1st Edition
Biobanks Governance in Comparative Perspective
Part 1: Conceptualising biobanks 1. Biobanks and governance: an introduction - Herbert Gottweis and Alan Petersen 2. Biobanks in action: new strategies in the governance of life - Herbert Gottweis Part 2: How to build a biobank: comparing different approaches 3. The rise and fall of a biobank: the case of Iceland - Gísli Pálsson 4. Estonia: ups and downs of a biobank project - Rain Eensaar 5. Patient organizations as the (un)usual suspects: the biobanking activities of the Association Française contre les Myopathies and its Généthon DNA and Cell Bank - Michaela Mayrhofer 6. ‘This is not a national biobank…’: the politics of local biobanks in Germany - Ingrid Schneider 7. Governing DNA: prospects and problems in the proposed large United States population cohort - Amy Fletcher 8. Governance by stealth: large-scale pharmacogenomics and biobanking in Japan - Robert Triendl and Herbert Gottweis Part 3: Biobanks, publics, and citizenship 9. UK Biobank: bioethics as a technology of governance - Oonagh Corrigan and Alan Petersen 10. Biobanks and the biopolitics of inclusion and representation - Richard Tutton 11. The informed consenters: governing biobanks in Scandinavia - Lars Øystein Ursin, Klaus Hoeyer, & John-Arne Skolbekken 12. Framing consent: the politics of ‘engagement’ in an Australian biobank project - Beverley McNamara and Alan Petersen 13. Governing through biobanks: Research populations in Israel - Barbara Prainsack
Biography
Herbert Gottweis is Professor in the Department of Political Science at the University of Vienna, Austria.
Alan Petersen is Professor of Sociology, School of Political and Social Inquiry, Monash University, Melbourne, Australia. He is also an Honorary Visiting Professor at Plymouth University and at City University in London, UK.
