This volume investigates human genetic biobanking and its regulation in various Asian countries and areas, including Japan, Mainland China, Taiwan, Hong Kong, India and Indonesia.. It sheds light on how cultural, socio-political and economic factors influence the set-up of bioethical regulation for human genetic biobanks and how bioethical sensitivities surrounding biobanks are handled.
Apart from placing discourses of trust in an international perspective, the comparative materials presented in this volume also put into perspective the concepts of genetic theft and exploitation, and genetic wealth and trust. This collection contains case studies of biobanking practices in societies with different needs and welfare levels, and provides insights into government strategies towards genetic resources by examining bioethics as practised at home.
Table of Contents
1. Introduction: Human Genetic Biobanking in Asia: Issues of Trust, Wealth and Ambition Margaret Sleeboom-Faulkner Part One: Biobanking in Welfare Societies 2. Public Trust, Commercialisation, and Benefit Sharing: Towards a Trustworthy Biobank in Taiwan Hung-En Liu and Terence Hua Tai 3. Biobanks in Japan: Ethics, Guidelines and Practice Gerard Porter 4. Trust and the Creation of Biobanks: Biobanking in Japan and the UK Tohru Masui 5. Should We Invest in Biobanking in Hong Kong? Using Biobanking for Dyslexic Studies in Hong Kong as an Example Mary Miu Yee Waye and Connie Ho Part Two: Biobanking and Problems of Inequality 6. Collecting Families: An Institutional Approach to Human Genetic Biobanking in Indonesia Margaret Sleeboom-Faulkner 7. India’s Preparedness in Tackling Biopiracy and Biobanking: Still Miles to Go Nandini K. Kumar 8. The Indian Genomic Biobank Initiative and Emerging Bioethical Issues: a Community-based Perspective Prasanna Kumar Patra and Margaret Sleeboom-Faulkner 9. Within Borders: Risks and the Development of Biobanking in China Wen-Ching Sung 10. Bioethical Regulation and Human Genetic Databases in Mainland China: a National Survey among Scientists and Regulators on Consent Issues and Benefit-sharing Xinqing Zhang
Margaret Sleeboom-Faulkner is Reader in Anthropology at the University of Sussex.