Intellectual and Developmental Disabilities provides a unique contribution not currently available in the professional literature by addressing the experiences and perspectives of families living with or raising a child with a disability. Designed for family therapists, social workers, and other helping professionals, it provides empirically-based, practical information for working with families experiencing intellectual and developmental disabilities of a loved one. This book also provides important information for navigating the various professional systems of care with which these families interface: health care providers, early childhood intervention teams, educational systems, the legal system, and financial planners.
"Goff and Springer have provided a book that combines professional expertise with practical strategies for daily living. The authors have a rare combination of skills! Families of individuals with intellectual and developmental disabilities and professionals working with them will find the book to be a valuable resource."
Libby Kumin, professor, Speech-Language-Hearing Sciences, Loyola University Maryland
Part I: Foundations for Understanding Developmental, Intellectual, and Other Disabilities 1. Intellectual and Developmental Disabilities: An Introduction and Overview Brie Turns, MS, PhD, Briana S. Nelson Goff, PhD, Marilyn Masterson, PhD, RN, Jessica D. Cless, MS, and Adam W. Cless, MS2. A Systemic and Contextual Lens of Disability: Family Stress, Ambiguous Loss, and Meaning Making Nicole Piland Springer, PhD, Brie Turns, MS, PhD, and Marilyn Masterson, PhD, RN3. Discovering Resilience: Moving Forward on the Journey Thomas Knestrict, EdD 4. Advice to New Parents From Parents: Reflecting on the Journey Jessica D. Cless, MS, Ellen Bodine, BS, Ashley Edelman, BS, Laura Farkas, BS, Adam W. Cless, MS, Briana S. Nelson Goff, PhD, and Nicole Piland Springer, PhD Part II: Perspectives, Contributions, and Lived Experiences of Individuals with IDD and Their Families on the Journey5. Understanding and Supporting Identity Formation and Meaning Making Kami L. Gallus, PhD and Jennifer L. Jones, PhD 6. Perspectives From Mothers: Recognizing Their Strengths and Contributions Beyond Caregiving Jessica D. Cless, MS and Christyne Stephenson, MS 7. Perspectives From Fathers: Recognizing Their Strengths and Contributions Beyond Breadwinning Gail E. Bentley, PhD, Matthew D. Brown, PhD, and Jason B. Whiting, PhD 8. The Sibling Experience: More Than My Brother’s Keeper Carolyn Shivers, PhD 9. Grandparents: Meaningful Contributors to a Changing Family Landscape Sandra Woodbridge, PhD and Laurie Buys, PhD Part III: Navigating Professional Systems of Care: From Birth to Adolescence10. The Medical Perspective: Developing Health Literacy in Families Karen Summar, MD, MS 11. Allied Health Professionals: Enhancing Potential Through Early Childhood Intervention and Therapies Jennifer J. Bekins, MS 12. The Education System: Building Partnerships and Inclusive Communities Grace Francis, PhD and Sarah Nagro, EdD Part IV: Preparing for the Future: The Transition to Adulthood and Beyond 13. Special Needs Financial Planning: Optimizing Resources for the Future Mitzi K. Lauderdale, JD, CFP®, Michael C. Walther II, CPA/PFS, CFP®, CFA®, and Nicole Piland Springer, PhD 14. Meaningful Employment: Fostering Opportunities for Adults with IDD to Thrive Jennifer L. Jones, PhD and Kami L. Gallus, PhD 15. Special Needs Legal Concerns: Guidelines for Families and Guardians Michele K. Goldberg, JD 16. When the Journey Ends: Parental Caregiving and Later Life Planning Elizabeth A. Perkins, PhD and Lieke van Heumen, PhD