"Children's palliative care is an evolving specialty and as such our knowledge base cannot remain static. This book constantly challenges the reader to critically analyze their own practices and beliefs within an evidence-based framework and as such makes a valuable contribution to the growing body of knowledge on this important subject." - Susan Fowler-Kerry, in the Foreword. This book caters for readers from different working environments and levels of experience. It is ideal for paediatric nurses with no specialist palliative care knowledge, and also for palliative care nurses with no specialist paediatric experience. Other healthcare professionals and therapists working with children, young people and their families will also find this book invaluable. It will also be ideal for undergraduate and postgraduate health and social care students, and professionals involved in children's hospices, community services and charity groups. "This book captures not just the rapidly evolving evidence base, but also as many current developments as possible and applies them in a meaningful way to the care of infants, children, and young people living with life-limiting illness, and their families. It offers an overview of contemporary issues and helps to stimulate the type of dialogue that can bring about the actions that will make a real difference for the children, young people and families in our care." - Rita Pfund, in the Preface.
Table of Contents
From resistance to resilience: The concept of palliative care for children and young people. Emotional safety in adverse events. A sudden, unexpected death in infancy. Sudden serious illness. Adolescent with cancer. Where to next: The transition to early adulthood. Young adult with Duchenne muscular dystrophy. Trans-generational illness: A family affected by HIV / AIDS. Neurologically degenerative disease. Cognate child with end-stage renal disease. Technology dependent children. Congenital complex disability. Safe practice in expanding boundaries 1: Underpinning safe practice. Safe practice in expanding boundaries 2: End of life care.