1st Edition
Participatory Case Study Work Approaches, Authenticity and Application in Ageing Studies
Participatory Case Study Work shows academic co-researchers how to adapt and implement their methods so that data collection and analysis is authentically participatory. At the heart of this text is advocating a participatory approach to case study work, with co-construction as a catalyst for shared understanding and action in advancing ageing studies.
Whilst case study research has a relatively long tradition in the canon of research methodologies, little attention has so far been paid to the importance and value of participatory case study work. This is surprising as its egalitarian and democratic value-base naturally lends itself to the co-production and co-creation of personal and collective theory drawn directly from lived experience.
The book brings together over 15 years’ worth of participatory case study work in ageing studies in which the editors have been actively involved as either front-line researchers or as supervisors to PhD and MPhil studies adopting the methodology, and from where each of the contributors is selected. Real-life case examples are shared in the main chapters of the book and they provide direction as to how learning can be applied to other settings. The chapters also contain key references and recommended reading. This volume will appeal to undergraduate and postgraduate students as well as postdoctoral researchers interested in fields such as research methods, qualitative methods, ageing studies and mental health studies.
Introduction
John Keady and Sion Williams
1. Participatory Case Study Work: What It Is, How It Functions and Our Adaptations to the Approach
Sion Williams and John Keady
Part 1: Working One-to-one to Develop a Personal Theory
2. Living at Home with Semantic Dementia: Creating a Life Story Book with Ruby and Brian to Support Personal Identity and Well-being
Jackie Kindell, Ray Wilkinson and John Keady
3. ‘The Man on the Cross’: Uncovering the Body, Faith and Reflexive Self in Late-stage Chronic Obstructive Pulmonary Disease
Sion Williams and John Keady
4. Living at Home with Young Onset Dementia: Co-constructing a Family Biography with Susan and Her Nominated Family Members
Pamela Roach, Penny Bee and John Keady
5. Diagramming Stroke Survivorship and Recovery: Supporting Malcolm and Margaret to Conceptually Develop and Find Meaning in the ‘Stroke Circle’ and Its Situated Function as a ‘Boundary Fence’
Josie Wray, Sion Williams and John Keady
6. A Life in Balance: Co-constructing Sarah’s Early Adjustment to Alzheimer’s Disease Through a Series of Visual Representations of a See-saw
John Hughes-roberts, Sion Williams and John Keady
7. Visual Stories and Living with Dementia: Developing and Co-constructing a Neighbourhood Map with Diane and Dave to Represent Ageing-in-place
Xia Li, John Keady and Richard Ward
Part 2: Generating a Collective Theory from a Series of Personal Theories
8. Generating a Collective Theory of Early Diagnosis in Parkinson’s: The Value of the Participatory in Participatory Case Study Work
Sally Roberts, Sion Williams and John Keady
Part 3: Doing Participatory Case Study Work with Groups
9. Music in Mind: Understanding the ‘In The Moment’ Musical Experiences of People Living with Dementia in a Group Setting
Robyn Dowlen, Lucy Geddes, John Keady, Christine Milligan, Nick Ponsillo and Caroline Swarbrick
10. ‘Stories from a Very Different Salford’: Co-designing and Co-producing a Biographical Place-making Animation with the Open Doors Research Group
Open Doors Research Group, Cathy Riley and Caroline Swarbrick
11. New Horizons: Working with Communities to Develop Dementia Friendly Churches
Bob Friedrich, Bob Woods and Sion Williams
Part 4: Drawing It Together
12. Conclusion: Reflections and Directions in Participatory Case Study Work
John Keady and Sion Williams
Biography
Sion Williams is Reader in Health Research in the School of Health Sciences at Bangor University, UK.
John Keady is Professor of Older People’s Mental Health Nursing, a joint appointment between The University of Manchester and Greater Manchester Mental Health NHS Foundation Trust, UK.
