1st Edition

The Routledge International Handbook of Disability and Global Health

    762 Pages 16 B/W Illustrations
    by Routledge

    This handbook will raise awareness about the importance of health and well-being of people with disabilities in the context of the global development agenda: Leaving No-one Behind.

    There has been a growing discussion on how people with disabilities should be included in the global health landscape. An estimated one billion people have some form of disability, 80% of whom live in low- and middle-income settings. People with disabilities are more likely to be poor, with restricted access to health and social services, education, rehabilitation and employment. Despite this, people with disabilities are often overlooked in global health and development efforts. Furthermore, the COVID-19 pandemic has shown that unless systematically planned for and included in policies and programmes, people with disabilities remain at an increased risk of being adversely affected in times of humanitarian crisis and emergency disasters.

    Divided into eight sections:

    • Disability and Health Frameworks
    • Health Justice, Rights and Bioethics
    • Gendering Disability Health
    • Disability and Global Mental Health
    • Disability and Access to Healthcare, Including Workforce Development
    • Crises and Health
    • Technology and Digital Health
    • Disability, Ageing and Dementia Care

    This handbook covers the full range of topics pertaining to disability and global health including inclusive health; access to rehabilitation; global mental health and disability; medical training and disability; community based inclusive development for improving health and rehabilitation; maternal health and sexual reproduction; preventive care and health promotion for people with disabilities; health, disability and indigenous knowledges; bioethics and human rights; data protection; and health in the global south.

    It will be of interest to all scholars, students and professionals working in the fields of disability studies, health studies, nursing, medicine, allied health, development studies and sociology.

    Section One - Disability and Health Frameworks

    Edited by Minerva Rivas


    Chapter One – “Nothing About Us Without Us!”: Disability representation in healthcare structures, policies, and relationships

    Kristi L. Kirschner, Judy Panko Reis, Debjani Mukherjee and Jim I. Charlton


    Chapter Two – Discussing models of disability and models of health in a global context

    Hisayo Katsui and Lieketseng Ned


    Chapter Three – Epistemologies of disability from the global South: Towards good health

    Chioma Ohajunwa and Maximus Monaheng Sefotho


    Chapter Four – The radical potential of psychosocial disability activism in the global South

    Akriti Mehta


    Chapter Five – Inclusive and Equitable Policies: EquiFrame and EquIPP as Frameworks for the Analysis of the Inclusiveness of Policy Content and Processes

    Joanne McVeigh, Hasheem Mannan, Ikenna Ebuenyi and Malcolm MacLachlan


    Chapter Six – Redressing access to equitable health care for people with disabilities: Using a health systems framework

    Vic McKinney, Marguerite Schneider and Emma Louise McKinney


    Section Two - Health Justice, Rights and Bioethics

    Edited by Minerva Rivas


    Chapter Seven - Lack of accessibility and the Right to Health: Reframing access as a manifestation of epistemic justice

    Caroline Jagoe and Parigya Sharma


    Chapter Eight - Disability, Mental Health and International Human Rights Law: A Global Health Perspective

    Charles O’Mahony

    Chapter Nine – Decision-making for or against predictive genetic/genomic testing for late-onset diseases in prenatal and pediatric setting

    Bettina M. Zimmermann


    Chapter Ten – Health care reforms and policies from a disability-rights perspective

    Elena S. Rotarou


    Chapter Eleven – Disability competencies for disability rights in the curriculum in the Global North and Global South

    LuanJiao Hu, Kanchan Marcus, Stephanie D Short and Satendra Singh


    Section Three – Gendering Disability Health

    Edited by Karen Soldatić


    Chapter Twelve – Disability and reproductive health: Global experiences

    Tara Casebolt


    Chapter Thirteen – Traumatic Brain Injury as a Result of Violence for Indigenous Women: The Importance of Appropriate Monitoring Systems, Screening and Models of Care

    Michelle Fitts and Karen Soldatić


    Chapter Fourteen – The influence of marital relationships on the mental health of mothers of children with autism in Bangladesh

    Sharin Shajahan


    Chapter Fifteen – Indigenous Healing Cosmologies and Western Systems in Madwaleni: A Proposed space for a Reconciliation Model for Plural Healthcare

    Thando May and Gubela Mji


    Section Four - Disability and Global Mental Health

    Edited by Leslie Swartz


    Chapter Sixteen – Global Mental Health and Disability in Sub-Saharan Africa

    Nathaniel Scherer, Eleni Misganaw, Michael Njenga, Grace Ryan and Julian Eaton


    Chapter Seventeen – Culture, disability and global mental health: Perspectives from an African worldview

    Lily Kpobi, Jennifer Peprah, Leveana Gyimah and Dzifa Attah


    Chapter Eighteen – Stigma and Discrimination against People with Psychosocial Disabilities in Low- And Middle-Income Countries

    Amanpreet Kaur, Sudha Kallakuri, Tesfahun Mulatu, Bezawit Ketema, and Graham Thornicroft

    Chapter Nineteen – Integrating persons with psychosocial disabilities across sectors: meaningful and authentic inclusion in global mental health

    Charlene Sunkel, Claudia Sartor, Kriti Vashisht, Karina Stjernegaard and Agus Sugianto


    Chapter Twenty – Mapping “Global mental health”: Histories, practices, and research

    Hannah Goozee and Jana Fey


    Chapter Twenty-one – Health Humanities and Psychosocial Disabilities in a Campus-town: An Autoethnographic Case Study

    Gayathri Prabhu


    Chapter Twenty-two - The Vexed Question of Capacity as Enshrined by the UNCRPD: Psychosocial disability, and human rights

    Alex Freeman


    Section Five – Disability and Access to Healthcare, Including Workforce Development

    Edited by Satendra Singh


    Chapter Twenty-three – Much more than ‘getting there’: Frontline views of healthcare engagement with people with disabilities

    Kate Sherry, Maryke Bezuidenhout and Anri-Louise Oosthuizen


    Chapter Twenty-four – Access to healthcare services by people with intellectual and developmental disabilities

    Callista Kahonde and Fleur Boot


    Chapter Twenty-five – Disability Studies and Critical Pedagogy in Health Professional Education: Developing a community-focused inclusive workforce using lessons from South Africa

    Judith Mahlangu, Fasloen Adams, Laurel Baldwin-Ragaven and Theresa Lorenzo


    Chapter Twenty-six – Practical ways of doing health promotion with special focus on people with disabilities

     Keikelame, M.J.,Molamu, M J and Maart, S.


    Chapter Twenty-seven – “Unfortunately we are stuck”: Considerations for improving access and inclusion to health for people who are deaf

    Victor de Andrade and Joanne Neille


    Chapter Twenty-eight – Promoting Inclusive Development in a Rural Community

    Mpilo Henry Booi, Xakathile Dabula and Eve Madeleine Duncan


    Chapter Twenty-nine – Knocking on Access Doors: Learners with Disabilities in Health Professions

    Sharad Philip, Shubha Nagesh and Satendra Singh

    Chapter Thirty – Disability Accommodations: Towards Equity and Justice

    Satendra Singh, Sharad Phillip and Shubha Nagesh


    Chapter Thirty-one – Sign language and other minority languages in healthcare: Reframing language as a tool for accessing health care

    Nomfundo Moroe and Khetsiwe Phumelele Masuku


    Section Six – Crises and Health

    Edited by Lieketseng Ned


    Chapter Thirty-two – Catastrophic Health-Care Expenditures for People with Disabilities: A barrier to health care

    Mónica Pinilla-Roncancio


    Chapter Thirty-three – Disability, Food Insecurity, and Health: Examining Linkages in the Yemini Civil War

    Bryce Austin Hollander, Janet E. Lord and Michael Ashley Stein


    Chapter Thirty-four – Nurturing Children with Disabilities in Crisis

    Shubha Nagesh and Mildren Omino


    Chapter Thirty-five – Shared stories of uncertainty, fear and discrimination: How narrative interviews about COVID-19 with people with disabilities in 5 countries exemplify exacerbation of existing liminality and structural violence

    Mary Wickenden


    Section Seven - Technology and Digital Health

    Edited by Karen Soldatić


    Chapter Thirty-six – The worlds of disability and health technologies: A vital part of the larger inclusion environment

    Gerard Goggin and Surona Visagie


    Chapter Thirty-seven – Prerequisites for digital participation – The case of digital health technology and people with impairments

    Stefan Johansson, Per-Olof Hedvall, Jan Gulliksen, Lena von Koch and Catharina Gustavsson


    Chapter Thirty-eight – Market Forces in Automated Mental Health Services: New Claims in Algorithmic Care and Disability Justice

    Piers Gooding


    Chapter Thirty-nine – Barriers for adoption and innovation on rehabilitation technology in LMIC countries: A case study in Colombia

    Andrés M. González-Vargas, Johann Barragán Gómez, Mario Andres Chavarria and Minerva Rivas Velarde


    Chapter Forty – Virtual reality as a panacea to promote the health of people with neurodevelopmental disabilities? Current evidence, challenges, and the way forward

    Caroline Mills, Danielle Tracey and Robert Gorkin


    Chapter Forty-one – Algorithmic bias and access of patients with a disability to healthcare in the digital health age: Legal perspectives from Switzerland, the European Union, and the United States of America

    Hélène Bruderer


    Section Eight – Disability, Ageing and Dementia Care

    Edited by Lieketseng Ned


    Chapter Forty-two – Dementia, disability, and global health

    Déborah Oliveira, Dubhglas Taylor, Eileen Taylor, Roxanne Jacobs, Elaine Mateus, Christine Musyimi, Elizabeth Mutunga and Marguerite Schneider


    Chapter Forty-three – Moving toward inclusive dementia care for an ethnically diverse population in Belgium

    Saloua Berdai Chaouni


    Chapter Forty-four – Ageing, disability, dementia and gender and sexuality diversity: What do the intersections tell us about models of care?

    Louisa Smith, Lyn Phillipson, Emma Kirby, Christy E. Newman and Amie O’Shea


    Chapter Forty-five – Disability and Dementia Care in Ghana: A political economy review

    Daniel Doh, Kofi Awuviry-Newton and Samuel Dakey


    Chapter Forty-six – The Double Bind: Ageing and the Transition of Care for People with Disability and Their Carers from Minority Migrant Communities

    Karen Soldatić, Daniel Doh, Rohini Balram, Lise Mogensen and Nichole Georgeou


    Lieketseng Ned is an occupational therapist and an Associate Professor in the Division of Disability and Rehabilitation Studies in the Department of Global Health at Stellenbosch University. She is also an Editor-in-Chief of the African Journal of Disability.

    Minerva Rivas Verlade is an Associate Professor in Disability Health at the Geneva School of Health Science.

    Satendra Singh MD is a Professor of Physiology at the University College of Medical Sciences, University of Delhi, India.

    Leslie Swartz is a clinical psychologist and Professor in Psychology at Stellenbosch University, South Africa.

    Karen Soldatić is a Canadian Excellence Research Chair – Health Equity and Community Wellbeing, Toronto Metropolitan University and Institute Fellow, Whitlam Institute, Western Sydney University.