First published in 1998, this volume why and how genetic engineering has emerged as the technology most likely to change our lives, for better or worse, in the opening century of the third millennium. Over twenty international experts, including moral philosophers and social scientists, describe the issues and controversies surrounding modern biotechnology and genetic engineering. They explore ways in which lay individuals and groups can join in an effective and constructive dialogue with scientists and industrialists over the assessment, exploitation and safe management of these new and important technologies.
Topics covered include a discussion of the issues surrounding ‘Dolly’, the cloned sheep, the politics and ethics of the international research programme to sequence the entire human genome, the ethical questions raised by the creation of transgenic farm animals, the morality of genetic experimentation on animals, the controversy surrounding the patenting of genetic material and of the transgenic animals themselves, the ethical implications of engineering animals for transplanting their organs into humans, and the environmental hazards of releasing genetically engineered organisms.
Table of Contents
1. The Social Management of Genetic Engineering: An Introduction. Peter Wheale and Ruth McNally. 2. Patrolling the Boundaries or Tracing the Contours: Cartographic Metaphors and the Human Genome Project. Peter Glasner. 3. The European Community as an Ethical actor? Policy Making on the Human Genome and the Role of the European Parliament. Gabriele Abels. 4. The UK Human Genome Mapping Project Resource Centre: A User Analysis. Peter Glasner, Harry Rothman and Wan Ching Yee. 5. How Long is Co-operation in Genomics Sustainable? Pierre Benoit Joly and Vincent Mangematin. 6. Human Genome Research and the Human Genome Diversity Project: Some Ethical Issues. Peter Wheale. 7. DNA Diagnosis and the Emergence of Cancer-Genetic Services in European Health Care. Pascale Bourret, Lene Koch and Dirk Stemerding. 8. From Eugenics to Therapeutics: The Impact of Opposition on the Development of Gene Therapy in the USA. Paul Martin. 9. Some Moral and Legal Implications of the New Genetics for the Foetus. Peter Wheale. 10. The Moral Value of Animals: Philosophical and Ethical Considerations Regarding Modern Biotechnology. Hub Zwart. 11. Xenografting as a Subject for Public Debate. Medard Hilhorst. 12. Engineering Acceptance: Representations of ‘The Public’ in Debates on Biotechnology. Alison Hill and Mike Michael. 13. Useful Models for Biotechnology Hazard Identification: What is this Thing called ‘Familiarity’? Ad van Dommelen. 14. Democratising the Policy Process for the Environmental Release of Genetically Engineered Organisms. René von Schomberg. 15. Public Policy and Transgenic Animals: Case-by-Case Assessment as a Moral Learning Process. Frans W.A. Brom, Jan Vorstenbosch and Egbert Schroten. 16. From Animal Welfare to Intrinsic Value: Reconstructing Public Debates on Animal Biotechnology. Michiel Korthals and Elmar Theune. 17. Consensus Conferences as Participatory Policy Analysis: A Methodological Contribution to the Social Management of Technology. Igor Mayer and Jac Geurts. 18. The Consequences of Modern Genetic Engineering: Patents, ‘Nomads’ and the ‘Bio-Industrial Complex’. Ruth McNally and Peter Wheale.
’...it is a valuable contribution in the public debate as a driving force behind the policy formulation.’ Biotechnology and Development Monitor ’There are some excellent papers within this collection...’ Health, Risk and Society ’...important conceptual and policy-related contributions to the social science analysis of genetics. Both the depth and range of material that is covered are impressive and the referencing and indexing especially useful as a resource for those coming new to the field. The material is very well written and accessible...provides policy makers with critical yet constructive analyses of current regimes of genetic regulation and governance.’ New Genetics and Society ’...anyone interested in more general issues in social studies of science and the public understanding of science would benefit.’ Public Understanding of Science ’...the papers develop valuable insights individually and collectively, to expand understanding of international efforts to manage genetic engineering and engineer public responses to it...a model of fruitful cross-European debate.’ Medical Sociology News