Understanding Young Onset Dementia : Evaluation, Needs and Care book cover
1st Edition

Understanding Young Onset Dementia
Evaluation, Needs and Care

ISBN 9780367568160
Published July 23, 2021 by Routledge
188 Pages 5 B/W Illustrations

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Book Description

Understanding Young Onset Dementia provides a state-of-the-art overview of approaches to care and evaluation for people with young onset dementia. It reviews the challenges in providing care and services, outlines new innovations in treatment and explores the impact of the condition to offer guidance about best practice in care.

Written by world-leading researchers and experts in the field, this book gives key evidence for best practice and focuses on lived experience of those with young onset dementia. It has a broad focus looking at aspects of care beyond diagnosis and gives a comprehensive summary of the current qualitative and quantitative research in the field of young onset dementia. This international collaboration fills a much-needed gap in the academic market and is vital to guide learning and deliver future innovations.

This book will be of great interest for academics, scholars and post graduate students in the field of mental health and dementia research. It will also appeal to neurologists, psychiatrist, geriatricians and psychologists looking to update their knowledge or already working in the field.

Table of Contents


Wendy Mitchell


Part 1: Introduction to young onset dementia

Chapter 1

Young-onset dementia - challenges in nomenclature and clinical definitions 

Dennis van de Veen, Christian Bakker, Raymond Koopmans

Chapter 2

Epidemiology and subtypes of dementia

Dexter Penn, Martin Rossor

Part 2: Evaluation of dementia in younger people

Chapter 3

Clinical presentation and differential diagnosis of dementia in younger people

Yolande Pijnenburg, Cynthia Klaassen

Chapter 4

Changes in behavior and emotions

Joany Millenaar, Marjolein de Vugt

Part 3: Needs in Young Onset Dementia 

Chapter 5

The experience of living with young onset dementia

Jan Oyebode

Chapter 6

The perceptions and experiences of children and young people who have a parent with young onset dementia

Pat Sikes, Melantie Hall

Chapter 7

Care needs and experiences with services in young-onset dementia

Christian Bakker

Part 4: Care and Support

Chapter 8

International differences in best practice for young onset dementia 

Vasileios Stamou, Janet Carter

Chapter 9

Vocational Rehabilitation for Young Onset Dementia: International Perspectives

Jun Yaeda, Nobuko Sunami

Chapter 10

An overview of ehealth interventions to support caregivers. A review of evidence relevant to Young Onset Dementia

Bridget Jones

Chapter 11

Palliative care in people with Young Onset Dementia

Raymond Koopmans, Jenny van der Steen, Marieke Perry, Romy Van Rickstal


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Marjolein de Vugt is Professor of Psychosocial Innovations in Dementia at the Division of Psychiatry and Neuropsychology, Maastricht University and Health Care Psychologist at Maastricht University Medical Centre, Netherlands.

Janet Carter is Associate Professor of Psychiatry at UCL and Honorary Consultant of Old Age Psychiatry at the North East London NHS Mental Health Trust, UK.