Human Population Genetic Research in Developing Countries

The Issue of Group Protection

By Yue Wang

© 2014 – Routledge

255 pages

Purchasing Options:
Paperback: 9781138937505
pub: 2015-08-21
US Dollars$49.99
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Hardback: 9780415835398
pub: 2013-11-20
US Dollars$145.00
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About the Book

Human population genetic research (HPGR) seeks to identify the diversity and variation of the human genome and how human group and individual genetic diversity has developed. This book asks whether developing countries are well prepared for the ethical and legal conduct of human population genetic research, with specific regard to vulnerable target group protection. The book highlights particular issues raised by genetic research on populations as a whole, such as the potential harm specific groups may suffer in genetic research, and the capacity for current frameworks of Western developed countries to provide adequate protections for these target populations.

Using The People’s Republic of China as a key example, Yue Wang argues that since the target groups of HPGR are almost always from isolated and rural areas of developing countries, the ethical and legal frameworks for human subject protection need to be reconsidered in order to eliminate, or at least reduce, the vulnerability of those groups. While most discussion in this field focuses on the impact of genetic research on individuals, this book breaks new ground in exploring how the interests of target groups are also seriously implicated in genetic work. In evaluating current regulations concerning prevention of harm to vulnerable groups, the book also puts forward an alternative model for group protection in the context of human population genetic research in developing countries. The book will be of great interest to students and academics of medical law, ethics, and the implications of genetic research.

Table of Contents

1. Introduction 2. Human Gene, Genetic Information and Genetic Research 3. Consent and Human Subject Protection 4. Human Population Genetic Research and its Harms 5. Group Protection in Human Population Genetic Research 6. Developing Countries: Mother Loads of Genes? 7. Conclusion 8. Appendix 1 9. Appendix 2

About the Author

Yue Wang is a lecturer in Xi’an Jiaotong University, PR China, Research Staff of Information Security Law Research Centre at Xi’an Jiaotong University.

About the Series

Biomedical Law and Ethics Library

Scientific and clinical advances, social and political developments and the impact of healthcare on our lives raise profound ethical and legal questions. Medical law and ethics have become central to our understanding of these problems, and are important tools for the analysis and resolution of problems – real or imagined.

In this series, scholars at the forefront of biomedical law and ethics will contribute to the debates in this area, with accessible, thought-provoking, and sometimes controversial ideas. Each book in the series will develop an independent hypothesis and argue cogently for a particular position. One of the major contributions of this series is the extent to which both law and ethics are utilised in the content of the books, and the shape of the series itself.

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Subject Categories

BISAC Subject Codes/Headings:
LAW000000
LAW / General
LAW013000
LAW / Civil Rights
LAW046000
LAW / Health
LAW093000
LAW / Medical Law & Legislation
LAW110000
LAW / Indigenous Peoples
MED050000
MEDICAL / Ethics
MED106000
MEDICAL / Research
SOC042000
SOCIAL SCIENCE / Developing Countries
SOC057000
SOCIAL SCIENCE / Disease & Health Issues