How can we measure the quality of life in children and adolescents with chronic disease?
Major progress in the diagnosis and treatment of severe and chronic disease has led to an increased number of children and their families having to adapt and cope with the impact of disease, survival, and the cost of treatment. Health professionals have responded to this by developing a diversity of instruments for measuring quality of life for use in paediatrics, psychology and public health. This book introduces the reader to the emerging field of quality of life assessment and provides a comprehensive overview of the conceptual and methodological issues concerning quality of life in child and adolescent illness. Particular emphasis is provided on current efforts to measure the impact of specific chronic conditions on different domains of child functioning. Future directions are outlined for the development of appropriate instruments for measuring quality of life in children and adolescents.
Quality of Life in Child and Adolescent Illness is intended for psychologists, paediatricians, paediatric nurses, child psychiatrists, public health professionals, researchers and other interested readers from the undergraduate to the working professional.
Tables and Illustrations. Preface. List of Contributors. Part I: Introduction . Koot, The Study of Quality of Life: Concepts and Methods. Part II: Models and Perspectives. Wallander, Theoretical and Developmental Issues in Quality of Life for Child and Adolescents. Spieth, Generic Health-Related Quality of Life Measures for Children and Adolescents. Kaplan, Quality of Life in Children: A Health Care Policy Perspective. Part III: Chronic Conditions as a General Class. Ireys , Epidemiology of Childhood Chronic Illness: Issues in Definitions, Service Use, and Costs. Ravens-Sieberer, Bullinger, Quality of Life from a Patient Group Perspective. Hanson , Quality of Life in Families of Youths with Chronic Conditions. Part IV: Specific Chronic Conditions. Bouman, Abdominal Disorders. French, Asthma. Eiser, Cancer. Delamater, Pearse, Cardiovascular Disease. Thompson, Karlish, Cystic Fibrosis. Langeveld, Passchier, Headaches. Bennett Johnson, Perwien, Insulin-Dependent Diabetes Mellitus. Wallander, Turrentine, Intellectual Disability. Part V: Conclusions and Future Directions. Koot, Wallander, Conclusions and Future Directions.