Children with neurodevelopmental disabilities such as mental retardation or autism present multiple challenges to their families, health care providers, and teachers. Professionals consulted by desperate parents often see the problems from their own angle only and diagnosis and intervention efforts wind up fragmented and ineffective. This book presents a model multidisciplinary approach to care--family-centered and collaborative--that has proven effective in practice. A pillar of the approach is recognition of the importance of performing culturally competent assessment and adjusting service delivery so that is responsive to cultural differences.
Detailed case stories illuminate the ways in which the approach can help children with different backgrounds and different disabilities. Most chapters include study questions, lists of resources, and glossaries to facilitate easy comprehension by professionals with different backgrounds--in special education, communication sciences, and disorders, clinical and counseling psychology, neuropsychology and psychiatry, social work, pediatrics--and program administrators as well as students, trainees and educated parents. Caring for Children With Neurodevelopmental Disabilities and Their Families constitutes a crucial new resource for all those professionally and personally concerned with these children.
Contents: Preface. P.A. Prelock, C.M. Vargas, A Different Kind of Challenge. J. Yoder, N. DiVenere, Family-Centered Care and the Family's Perspective: Traumatic Brain Injury, Cancer, and Co-Morbid Learning Challenges. C.M. Vargas, J. Beatson, Cultural Competence in Differential Diagnosis: Posttraumatic Stress Disorder and Reactive Attachment Disorder. D.A. O'Rourke, S.H. Contompasis, M. Holland, Neonatal Intensive Care Unit Follow-Up Clinic: Interdisciplinary Developmental Assessment for At-Risk Infants and Their Families. D.A. O'Rourke, R. Dennis, Community-Based, Interdisciplinary Assessment: Considering the Context for a Child With Spina Bifida. M.P. Dewees, J.E. Beatson, P. Douglas, Care Coordination in Challenging Contexts: Attention Deficit, Learning Disabilities, and Hearing Impairment. S.H. Contompasis, S. Burchard, On the Cutting Edge of Ethical Dilemmas: Reconciling an Adolescent's Transition to Adulthood. J. Yoder, S. Burchard, Parent to Parent Practicum to Learn About the Family Perspective: Down Syndrom and Celiac Disease. P.A. Prelock, C.M. Vargas, The Role of Partnerships in Program Development for Adolescents With Autism Spectrum Disorders. P.J. Cooper, R. Dennis, Building Capacity in Law, Policy, and Leadership: Public Administration in Support of Families and Clinicians. C.M. Vargas, P.A. Prelock, P.J. Cooper, The Pillars, the Process, and the People: An Innovative Approach to Training Health Professionals in Interdisciplinary Practice.