Challenges and Choices for Patient, Carer and Professional at the End of Life Living with Uncertainty
Living with Uncertainty gives a broad perspective on the complexities and challenges of the practice of end-of-life care, as well as the perceived benefits and limitations of medical intervention.
Drawn from research and clinical and pastoral experience, the book examines the feelings associated with the end of life, highlighting the demands that people are faced with and their consequences. It moves into the difficult area of people who feel defeated by their illness and can or want to live no longer, as well as the family, caregivers and professionals who surround them. These perspectives have been built upon around a hundred narratives of lived experience, combined with the wider clinical and practical range of voices. A topical post-script Lessons from Covid-19 captures the choices and challenges on a personal, professional and systemic level which the pandemic acutely revealed with a multiplicity of examples.
This will be essential reading for students and professionals in palliative and end-of-life care. Families and friends will also benefit from this book as they try to come to terms with the delicate but universal issues of death and dying.
Introduction; Part I: The dying person and their loved ones; Chapter 1: Attitudes to death and dying; Chapter 2: The end of life – people’s experiences; Part II: Medicine and care at the end of Life; Chapter 3: Medical intervention, a life saver or a life changer?; Chapter 4: Euthanasia and assisted dying; Chapter 5: Person-centred care; 6: Conclusion; 7: Post-script: Lessons from Covid-19; Glossary
'The honest stories presented here attest to the "fuzziness" of death and dying and its personal and professional impact on us, sometimes positive, sometimes not. This book will help you to understand why helping people to make the right choice is so important at this challenging time.'Philip Larkin, Kristian Gerhard Jebsen Chair of Palliative Care Nursing, University of Lausanne, Switzerland
'This book will be an asset to palliative professionals and to common man to rethink on end-of-life care.' Indira Madambath, Pallium India
'If you work in palliative care, I think you will enjoy this book. It addresses practical clinical questions that we have to deal with regularly.' Roger Woodruff, International Association for Hospice and Palliative Care