Compassionate Communities in Action Global Stories of Care, Loss and Connection

Foreword

Allan Kellehear

Introduction

Manjula Patel and Emma Hodges

1: Compassionate Birmingham – Creating, caring, connected and supportive communities in Birmingham and beyond

Edward Roberts and Emma Hodges

2: Resident Led – Brereton, a Compassionate Village

Sue Merriman

3: Compassionate Communities in Flanders : an account of the development and implementation of Compassionate Bruges and Compassionate Herzele

Louise D’Eer and Bert Quintiens

4: Building an ecosystem of compassionate care: connecting healthcare and communities

Camila Ronderos and Constanza González

5: Getxo Zurekin Basque Region Spain Compassionate Community

Naomi Hasson, Julen Larrañaga Martinez de Agirre, Julia Martinez Barbero and Maider Grajales

6: Compassionate Inverclyde

Alison Bunce and Anne Hendry

7: Compassionate communities growing in Japan: Matsuzaki and Honaminosato

Hirobumi Takenouchi and Sumiko Kanegae

8: From Grief to Belonging: The evaluation of a compassionate community movement

Mary Ann Boe

9: Oasis of Hope Community-Based Organisation: Building Compassionate Communities in Kenya

Leonard Kiprono and Erin Das

10 – From balloons to bonds: the journey of the students’ initiative in palliative care

Saif Mohammed

11: Caring Community Koln, Germany

Raymond Voltz, Georg Bollig, Karin Ohler, Sabine Eichberg, Anne Kreische, Birgit Weihrauch, Julia Strupp and Kerstin Kremeike

12:  Intro to Mid & East Antrim Agewell Partnership

Jenny Marshall

13: The Compassionate Ottawa Story

Monica Patten and Jim Nininger

Chapter 14: Compassionate Communities and Public Health Palliative Care for Children’s Hospices, an example from Queensland, Australia

Elham Day, Cara Doherty, Leigh Donovan

15: National work to support compassionate communities – learning and reflections from 17 years of work in Scotland

Mark A Hazelwood and Rebecca M Patterson

16: Translating Compassion into Action: Building an ecosystem for Compassionate Communities Singapore

Bee Hia Sim

17: Compassionate Communities : Up the East Coast

Hugh McElhinney and Joseph Sawyer

18: The South West Compassionate Communities Network (SWCCN) in Western Australia: A Case Study

Samar Aoun and Julieanne Hilbers

19: Building a Compassionate Community Through a Cultural Care Perspective: Experience from Taipei City, Taiwan

Samuel Shih-Chih Wang, Chia-Jen Liu and Sheng-Jean Huang

20: Bridging the gap in access to palliative care services through the Compassionate Communities for Uganda Initiative (CCUI)

Mark-Donald Bikosa Mwesiga, Lacey N. Ahern, Teresa Majkut, Saphra Amumpire and Rose Kiwanuka and Paul Mwambi

21: A deep dive into community connectors

Julian Abel and Rachael Basak

22: Reorientation of healthcare via community focused service redesign

Emma Hodges and Katie Burbridge

23: Death Literacy as Community Practice: Learning through skills, experience, action and knowledge

Kerrie Noonan and Niki Read

24: Death Literacy Index in Practice – case studies from the UK

James Byron and Emma Hodges

25: Conclusion

Manjula Patel and Emma Hodges

Biography

Emma Hodges is the founder of Public Health Palliative Care UK and runs a management consultancy. This follows over 15 years’ experience in public health palliative care including at Compassionate Communities UK and several years at a charitable hospice including as CEO. With 25 years’ experience in healthcare with a focus on workforce and service redesign, she is driven by issues related to health and social inequity. Her doctoral research focused on UK hospices and dementia. She is Treasurer and an executive board member for Public Health Palliative Care International and a trustee of E-Hospice.

Manjula Patel is CEO of Murray Hall Community Trust, a community anchor hub, an organisation working to improve people’s health and well-being through a social model of health from early years to end of life. Her doctoral research subject was about the development of compassionate communities, and she is a published author on the subject. She is also a Trustee of Locality and a member of the International Federation of Settlements.