1st Edition
Ethical, Social and Psychological Impacts of Genomic Risk Communication
1. Introduction
Ulrik Kihlbom, Mats G. Hansson and Silke Schicktanz
Part 1: New Visions of Genetics and Genomics as Integrative Medicine
2. Genomic Medicine in 2025-2030
Martina C. Cornel and GertJan van Ommen
Part 2: Risk Empowerment
3. Genomic Risk Perception and Implications for Patient Outcomes from Genetic Counselling
Marion McAllister
4. Genomic and Biological Risk Profiling: From Medicalization to Empowerment
Mats G. Hansson, Marie Falahee and Karim Raza
Part 3: Rethinking Professional Responsibility
5. On Patients’ Difficulties in Understanding Medical Risks and the Aims of Clinical Risk Communication: "They don’t really understand"
Ulrik Kihlbom
6. Ethical Consideration about Health Risk Communication and Professional Responsibility
Silke Schicktanz
7. Uncertainty and Risk Perception in the Context of Personalized Medicine: How do Familial Relationships Matter?
Sabine Wöhlke, Marie Falahee and Katharina Beier
Part 4: Social and Policy Implications
8. Direct to Consumer Personal Genomic Testing and Trust: A Comparative Focus Group Study of Lay Perspectives in Germany, Israel, the Netherlands and the UK
Manuel Schaper et al.
9. The Application of New Technologies to Improve Literacy among the General Public and to Promote Informed Decisions in Genomics
Serena Oliveri et al.
10. Algorithms as Emerging Policy Tools in Medicine: Opportunities and Challenges Ahead
Frederick Bouder
11. Epilogue
Mats G. Hansson, Ulrik Kihlbom and Silke Schicktanz
Biography
Ulrik Kihlbom is Associate Professor in Medical Ethics at Uppsala University.
Mats G. Hansson is Senior Professor of Biomedical Ethics and Director of The Centre for Research Ethics & Bioethics (CRB) at Uppsala University.
Silke Schicktanz is Full Professor of Cultural and Ethical Studies of Biomedicine at University Medical Center Göttingen.
