1st Edition

Family Support and Family Caregiving across Disabilities

Edited By George Singer, David Biegel, Patricia Conway Copyright 2012
    215 Pages
    by Routledge

    214 Pages
    by Routledge

    Family members provide the majority of care for individuals with disabilities in the United States. Recognition is growing that family caregiving deserves and may require societal support, and evidence-based practices have been established for reducing stress associated with caregiving. Despite the substantial research literature on family support that has developed, researchers, advocates and professionals have often worked in separate categorical domains such as family support for caregiving for the frail elderly, for individuals with mental illness, or for people with development disabilities.

    Family Support and Family Caregiving across Disabilities addresses this significant limitation through cross-categorical and lifespan analyses of family support and family caregiving from the perspectives of theory and conceptual frameworks, empirical research, and frameworks and recommendations for improvements in public policy. The book also examines children with disabilities, children with autism, adults with schizophrenia, and individuals with cancer across the life cycle.

    This book was published as a two-part special issue in the Journal of Family Social Work.

    1. Introduction to Book  David E. Biegel, George H.S. Singer, and Patricia Conway  Part I: Conceptual Frameworks  2. Toward a Cross Disability View of Family Support for Caregiving Families  George H.S. Singer, David E. Biegel and Brandy L. Ethridge  3. Capacity-Building Family-Systems Intervention Practices  Carl J. Dunst, and Carol M. Trivette  4. Marshalling Social Support: A Care-Getting Model for Persons Living with Cancer  Eva Kahana, Boaz KahanaMay Wykle, and Diana Kulle  5. Caregivers’ Perceptions of a Consumer-Directed Care Program for Adults with Developmental Disabilities  Linda Vinton  Part II: Empirical Research  6. Latina Mothers Caring for a Son or Daughter with Autism or Schizophrenia: Similarities, Differences, and the Relationship Between Co-Residency and Maternal Well-Being  Sandy Magaña and Subharati Ghosh  7. Pediatric Disability and Caregiver Separation  Judith L. M. McCoyd, Ayse Akincigil and Eun Kwang Paek  8. Characteristics and Trends in Family-Centered Conceptualizations  Pamela EpleyJean Ann Summers and Ann Turnbull  Part III: Public Policy  9. Family Quality of Life: A Framework for Policy and Social Service Provisions to Support Families of Children with Disabilities  Mian Wang and Roy Brown  10. Trends Impacting Policy Support for Caregiving Families  George H.S. Singer, David E. Biegel and Brandy L. Ethridge


    George H.S. Singer is based at the University of California, Santa Barbara, USA.

    David E. Biegel is based at Case Western Reserve University, USA.

    Patricia Conway is based at Mayville State University, USA.