Family members provide the majority of care for individuals with disabilities in the United States. Recognition is growing that family caregiving deserves and may require societal support, and evidence-based practices have been established for reducing stress associated with caregiving. Despite the substantial research literature on family support that has developed, researchers, advocates and professionals have often worked in separate categorical domains such as family support for caregiving for the frail elderly, for individuals with mental illness, or for people with development disabilities.
Family Support and Family Caregiving across Disabilities addresses this significant limitation through cross-categorical and lifespan analyses of family support and family caregiving from the perspectives of theory and conceptual frameworks, empirical research, and frameworks and recommendations for improvements in public policy. The book also examines children with disabilities, children with autism, adults with schizophrenia, and individuals with cancer across the life cycle.
This book was published as a two-part special issue in the Journal of Family Social Work.
Table of Contents
1. Introduction to Book David E. Biegel, George H.S. Singer, and Patricia Conway Part I: Conceptual Frameworks 2. Toward a Cross Disability View of Family Support for Caregiving Families George H.S. Singer, David E. Biegel and Brandy L. Ethridge 3. Capacity-Building Family-Systems Intervention Practices Carl J. Dunst, and Carol M. Trivette 4. Marshalling Social Support: A Care-Getting Model for Persons Living with Cancer Eva Kahana, Boaz Kahana, May Wykle, and Diana Kulle 5. Caregivers’ Perceptions of a Consumer-Directed Care Program for Adults with Developmental Disabilities Linda Vinton Part II: Empirical Research 6. Latina Mothers Caring for a Son or Daughter with Autism or Schizophrenia: Similarities, Differences, and the Relationship Between Co-Residency and Maternal Well-Being Sandy Magaña and Subharati Ghosh 7. Pediatric Disability and Caregiver Separation Judith L. M. McCoyd, Ayse Akincigil and Eun Kwang Paek 8. Characteristics and Trends in Family-Centered Conceptualizations Pamela Epley, Jean Ann Summers and Ann Turnbull Part III: Public Policy 9. Family Quality of Life: A Framework for Policy and Social Service Provisions to Support Families of Children with Disabilities Mian Wang and Roy Brown 10. Trends Impacting Policy Support for Caregiving Families George H.S. Singer, David E. Biegel and Brandy L. Ethridge
George H.S. Singer is based at the University of California, Santa Barbara, USA.
David E. Biegel is based at Case Western Reserve University, USA.
Patricia Conway is based at Mayville State University, USA.