Genetics and Gene Therapy shows the wide range of the debate and the very real significance that genetics and its associated developments have for human beings, individually and collectively. Few areas of science and medicine have resulted in the volume of academic and popular literature as has genetics. The so-called revolution in understanding of the causes of disease states, and even behavioural traits, has focussed public attention on the influence of genes in making us what we are. Rapidly, however, the potential benefits of such understanding were overtaken, in the public mind at least, by the question of the possible (negative) implications of genetic knowledge and associated technologies. The chapters in this volume show just how wide-ranging concern has become, ranging from regulation to cloning, with the fear of discrimination in between. Part One begins with a range of general discussions of about the genetic enterprise itself, followed by consideration of some specific questions. Part Two then addresses cutting edge debates in genetics.
'… to those … looking for a 'one stop shop' of current debates in a contentious new area spanning medicine and the law, this book brings together many of the key contributions.' - Health Sociology Review.
Contents: Series preface; Introduction. Genetics - General:Human genetics: the new panacea?, Julian Kinderlerer and Diane Longley; Regulation as facilitation: negotiating the genetic revolution, Julia Black; Whose genome project?, Darryl Macer; The gene genie: good fairy or wicked witch?, Sheila A.M. McLean; Procreative liberty in the era of genomics, John A. Robertson; Beyond 'genetic discrimination': toward the broader harm of geneticism, Susan M. Wolf; What makes genetic discrimination exceptional?, Deborah Hellman; Genetic secrets and the family, Dean Bell and Belinda Bennett; Genetic privacy, Lawrence O. Gostin; Challenging medical-legal norms: the role of autonomy, confidentiality, and privacy in protecting individual and familial group rights in genetic information, Graeme T. Laurie; Genetic testing and employee protection, Philippa Gannon and Charlotte Villiers; Pharmacogenetics: ethical issues and policy option, Allen Buchanan, Andrea Califano, Jeffrey Kahn, Elizabeth McPherson, John Robertson and Baruch Brody. Gene Therapy/Testing/Cloning: Beware! Preimplantation genetic diagnosis may solve some old problems but it also raises new ones, Heather Draper and Ruth Chadwick; Predictive genetic testing for conditions that present in childhood, Lainie Friedman Ross; Is there a case in favour of predictive genetic testing in young children?, Stephen Robertson and Julia Savulerscu; Inheritable genetic modification and a brave new world: did Huxley have it wrong?, Mark S. Frankel; Gene therapies and the pursuit of a better human, Sara Goering; Protecting the endangered human: toward an international treaty prohibiting cloning and inheritable alterations, George J. Annas, Lori B. Andrews and Rosario M. Isasi; 'Goodbye Dolly'? the ethics of human cloning, John Harris; Cloning and infertility, Carson Strong; Should we clone human beings? Cloning as a source of tissue for transplantation, Julian Saulescu; Going to the roots of the stem cell controversy, SÃ¸ren Holm; S