1st Edition
Giving a Voice to those Living with Locked-In Syndrome Sharing Feelings, Experiences, Hopes and Expectations
Preface: Shannan Keen
Chapter 1: An Introduction to Locked-in-Syndrome: Diagnosis, Care, and Outcomes
Steven Laureys and Mohammad Hossein Khosravi
Chapter 2: Communication from Gestures to Gadgets
James M. Brinton
Chapter 3: Brain-Computer Interfaces and the Future of Assistive Communication
David Moses
Chapter 4: “It Doesn’t Bend That Way”
Duncan R. Campling
Chapter 5: Vicissitude
Bram Harrison
Chapter 6: Locked Out: A Real-Life Story
Dick van der Heijde
Chapter 7: I’m Still Here
Ann Johnson
Chapter 8: The Second Life of Mario Bros
Bénédicte Jullien
Chapter 9: Communication Without Speech
Bex Kemp
Chapter 10: Piece Unique
Nelleke Koeners and Axelle Herwyn
Chapter 11: Let's Not Make a Whole Cheese Out of It
Isabelle Lauberthe
Chapter 12: A Brainstem Stroke which Led to Locked-in Syndrome
Wenche Loseth
Chapter 13: Light at the End of the Road
Paqui Villegas, translated by Fernando Vidal
Chapter 14: For a Better Life
Julio Lopes Ribeiro
Chapter 15: Black Dog
Dawn Faizey Webster
Chapter 16: Conclusion
Shannan Keen
Biography
Shannan Keen has a BA in Psychology and Philosophy, and a Neuroscience Masters from the Brain and Mind Research Institute, University of Sydney. In 2012, as part of her PhD, she founded, and continues to run, the Australian Register for Disorders of Consciousness (ARDoC) within the Brain Foundation. In 2022 she established the annual International Locked-in Syndrome Conference. In 2023 she launched the worldwide Locked-in Syndrome Community Forum on Facebook.
