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Haemophilia in Aotearoa New Zealand: More Than A Bleeding Nuisance book cover

1st Edition

Haemophilia in Aotearoa New Zealand More Than A Bleeding Nuisance

By Julie Park, Kathryn Scott, Deon York, Michael Carnahan Copyright 2019
238 Pages
by Routledge

238 Pages
by Routledge

238 Pages
by Routledge
Also available as eBook on:
Haemophilia in Aotearoa New Zealand provides a richly detailed analysis of the experience of the bleeding disorder of haemophilia based on longterm ethnographic research. The chapters consider experiences of diagnosis; how parents, children, and adults care and integrate medical routines into family life; the creation of a gendered haemophilia; the use and ethical dilemmas of new technologies... Read more

Chapter 1 A bleeding nuisance in Aotearoa New Zealand; Chapter 2 ‘Pretty normal really’; Chapter 3 Blood and sacrifice: sex, gender, and haemophilia; Chapter 4 New networks and technologies of care: different haemophilias; Chapter 5 The shadow on our lives: hepatitis C in the haemophilia community; Chapter 6 Joint action: asserting rights, inclusion, and equity through voluntary association; Chapter 7 Conclusions



 

Biography



Julie Park is Professor Emerita of Anthropology at the University of Auckland, New Zealand.



Kathryn M. Scott works in social research and advocacy. She is an Honorary Research Fellow in Anthropology at the University of Auckland, New Zealand.



Deon York works in the health sector. He is currently President of the Haemophilia Foundation of New Zealand (HFNZ) and on the Board of Directors of the World Federation of Hemophilia (WFH).



Michael Carnahan has worked in health services management and is former President of the Haemophilia Foundation of New Zealand (HFNZ).

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