1st Edition
Handbook of Self-Management and the Lived Experience of Healthcare
Section 1: Health and Rehabilitation Conditions
1. Self-Management in Traumatic Injuries in Rehabilitation Settings: From Theory to Clinical Practice
K.T.A. Ustrimova, B.R. Fait and S.L. Hauger
2. Self-Management Support for Older Adults in Stroke Rehabilitation: Implications for Rehabilitation Practice
Sedsel Kristine Stage Pedersen, Susanne Lillelund Sørensen and Hanne Pallesen
3. Fear of Movement and Avoidance Behaviour as Barriers for Effective Self-Management in Musculoskeletal Pain
Thomas Matheve and Liesbet De Baets
4. Capabilities for Community Living and Participation for Older Adults with Autism Spectrum Disorder
Elias Mpofu, Michał T. Tomczak and Ganette Apeadu-Baah
5. Self-Management for People with Chronic Inflammatory Arthritis
Christina Merete Tvede Madsen, Kirsten Lykke Knak, Astrid Jensen Damgaard et al.
6. Supportive Self-Management and Stroke
Frances Horgan, Olive Lennon, Mary O’Neill et al.
7. Integrating Self-Management Strategies Supported by Digital Technologies in Post-Stroke Rehabilitation
Ann Marie Hestetun-Mandrup, Anne Lund, Anne Catrine Trægde Martinsen et al.
8. Rehab in Your Pocket – Reimagining Low Back Pain Rehabilitation and Self-Management via Smartphone Apps
Claudi Didyk, Belinda Lange and Lucy Kate Lewis
9. The `Connected We St@nd´ Online Programme for Haemodialysis Self-Management: Translating Evidence into Practice
Helena Sousa, Oscar Ribeiro and Daniela Figueiredo
10. Shaping Independence: Self-Management in Arthrogryposis Multiplex Congenita through Shared Stories
Noémi Dahan-Oliel, Sarah Cachecho, Vasiliki Darsaklis B et al.
11. From Service Encounters to Simulation and Knowledge Translation: Pathways to Self-management in Aphasia
Emna Fakhfakh and Carole Anglade
12. Finding the Path of Self-Management in Multiple Sclerosis: From Insight to Future
Chungyi Chiu, Mojtaba Khaliji and and Md Refat Uz Zaman Sajib
Section 2: Lived Experiences in Self-Management
13. Self-Management in Visual Impairment Rehabilitation
Yong Yang and Buxin Han
14. Development of the Bladder Failure Self-Management Monitor (BFSMM): A Patient-Centered Tool for Self-Care
Paul M.W. Hackett
15. Steering My Own Wheelchair: The Rehabilitation Journey from Dependency to Interdependency
Shane Clifton
16. Our Liver Transplant Journey
Christopher Bushby and Cecilia (Novak) Bushby
17. Living with and the Self-Management of Bladder-Failure: A Transatlantic Autoethnography
Paul M.W. Hackett
18. Here’s My Number: The Lived Experience of a Breast Cancer Survivor
Jessica B. Schwarzenbach
19. Self-Management: Reflections of a 44-Year Pediatric Survivor
Brason Lee
Section 3: Perspectives of Self-Management
20. Self-Management for Neurorehabilitation in Low- and Middle-Income Countries
Eugene Nizeyimana
21. Participatory Approaches to Developing Self-Management Interventions
Ebuka Miracle Anieto, Ijeoma Blessing Anieto and Israel Ikechukwu Adandom
22. Beyond Compliance: Science Capital, Funds of Knowledge, and Self-Management in Rehabilitation
Jerome Atutornu
23. Integrating Dyadic Self-Management into Rehabilitation: Theoretical Perspectives, Practical Applications, and Considerations for Implementation
Olivia Crozier, Stephanie R. Cimino, Jacobi Elliott et al.
24. Towards Responsive Rehabilitation Systems: Rethinking Self-Management as a Behavioral and Contextual Practice
Nicola Diviani and Enxhi Qama
25. Self-Management in Older Adults
26. Building the Capacity of Children with Disabilities and their Families to Self-Manage Participation: A Key Goal of Pediatric Rehabilitation
Mats Granlund, Christine Imms, Henrik Danielsson et al.
27. Health Coaching as a Tool for Self-Management in Rehabilitation
John Naylor
28. Opening Pandora's Box on Supported Self-Management within Rehabilitation
Meredith Perry, Leigh Hale, Lizz Carrington et al.
29. The Hidden Side of Self-Management among Children with Disabilities and their Families
Kinga Pozniak, Elizabeth Chambers, Genevieve Currie et al.
30. Role of Self-Management Interventions in the Rehabilitation of Patients with Chronic Neurological Conditions
Ahman Sahely and Sheeba Rosewilliam
31. Self-Management for People with Chronic Conditions
Lauren Winterbottom
32. Harnessing Technologies for Self-Management in Rehabilitation
Jiali He, Ziwei Li, Yiling Tang et al.
33. New Technologies in Self-Management of Rheumatoid Arthritis
Pablo Rodríguez-Sánchez-Laulhé, Alberto Marcos Heredia-Rizo, Hermann Fricke-Comellas et al.
Biography
Christopher Hayre is an Associate Professor at the University of Canberra. He has published several original textbooks, which are widely implemented into academic curriculums, with translations into both Mandarin and Arabic. His research impact is evidenced on an international scale, not only influencing policy and practice, but engagement as respected PhD supervisor to students in the UK, UAE, Australia, and South Africa. His areas of expertise are medical imaging, health research, technology, and ethnography.
Dave Muller is currently a Co-Editor of the Rehabilitation in Practice Series, published by CRC Press. He has been involved in the publication of over 50 books and has published over 40 referred papers. He is a visiting Professor at the University of Suffolk, United Kingdom.
Marcia Scherer is a rehabilitation psychologist and founding President of the Institute for Matching Person & Technology. She is also Professor of Physical Medicine and Rehabilitation, University of Rochester Medical Center where she received both her Ph.D. and MPH degrees. She is Co-Editor of the book series for CRC Press, Rehabilitation Science in Practice Series.
Paul Hackett is a professor in ethnography at Emerson College, Boston, USA., a visiting professor in health research and a dissertation supervisor in the Department of Criminology at the University of Suffolk, UK. He is also a visiting scholar at the Royal Anthropological Institute in London. He has developed the declarative mapping sentence out of his research which is concerned with the categorial understanding that humans have of their world and how such understanding underpins and facilitates behaviour, drawing upon several branches of psychology, philosophy, anthropology, sociology, bird behaviour and research methods.
Ava Gordley-Smith is PhD research student at the University of Wales Trinity Saint David. Gordley-Smith’s research aims to develop a multidimensional psychological framework for understanding the relationship and intersection of attitudes toward environmental and social justice issues. Outside of her PhD research, her work focuses more broadly on both theoretical and applied methodologies in health and rehabilitation, the social sciences, and communication studies.
