Mainstream gerontological scholarship has taken little heed of people ageing with disability, and they have also been largely overlooked by both disability and ageing policies and service systems.
The Handbook on Ageing with Disability is the first to pull together knowledge about the experience of ageing with disability. It provides a broad look at scholarship in this developing field and across different groups of people with disability in order to form a better understanding of commonalities across groups and identify unique facets of ageing within specific groups. Drawing from academic, personal, and clinical perspectives, the chapters address topics stemming from how the ageing with disability experience is framed, the heterogeneity of the population ageing with disability and the disability experience, issues of social exclusion, health and wellness, frailty, later life, and policy contexts for ageing with disability in various countries.
Responding to the need to increase access to knowledge in this field, the Handbook provides guideposts for researchers, practitioners, and policy makers about what matters in providing services, developing programmes, and implementing policies that support persons ageing with long-term disabilities and their families.
Table of Contents
Part 1. Framing the Ageing with Disability Experience 1. Understanding Ageing with Disability Michelle Putnam, Caitlyn E. Coyle, Lydia P. Ogden, and Christine Bigby 2. Rethinking the Concept of Successful Ageing: A Disability Studies Approach Tove Harnett, Annika Taghizadeh Larsson, and Håkan Jönson 3. Ageing with Lifelong Disability: Individual Meanings and Experiences Over Time Lieke van Heumen 4. Integrating Critical Disability Studies and Critical Gerontology to Explore the Complexities of Ageing with Disabilities Hailee M. Yoshizaki-Gibbons 5. Social and Environmental Determinants of the Health of People with Disabilities Eric Emerson, Zoe Aitken, Hannah Badland, Nicola Fortune, Celia Green, and Jerome N. Rachele 6. Reducing the Shared Burden of Chronic Conditions among Persons Ageing with Disability and Older Adults in The United States Through Bridging Ageing and Disability Margaret L. Campbell and Michelle Putnam 7. Segmenting Ageing and Disability Policy: Ethical Concerns Jerome Bickenbach Part 2. Diverse Experiences of Ageing with Disability 8. Understanding the Experience of Growing Older with Cerebral Palsy Laura R. Moll and Cheryl A. Cott 9. Ageing with Deaf Blindness Peter Simcock & Jill Manthorpe 10. Ageing, Serious Mental Illness, and Perceptions of Self Over the Life Course Lydia P. Ogden 11. Ageing and Brain Injury: Long-Term Outcomes in Adults Angela Colantonio and Melissa Biscardi 12. Ageing with Multiple Sclerosis Marcia Finlayson, Michelle Ploughman, Julie Pétrin, & Roshanth Rajachandrakumar 13. Ageing When Being Autistic Hilde M. Geurts, Rebecca Charlton, and Lauren Bishop Part 3. Forwarding Social Inclusion 14. Community Participation and Engagement for Persons Ageing with Physical Disability Rachel Heeb, Courtney Weber, Jessica Dashner and Kerri Morgan 15. Design for One is Design for All: The Past, Present, and Future of Universal Design as a Strategy for Ageing-In-Place with Disability Jon A. Sanford & Elena T. Remillard 16. Support For Decision-Making As People Age With A Cognitive Impairment Terry Carney and Shih-Ning Then 17. Internalised Ageism And The User Gaze In Eldercare: Identifying New Horizons Of Possibilities Through The Use Of A Disability Lens Håkan Jönson, Annika Taghizadeh Larsson,and Tove Harnett 18. Creating Age And Disability Friendly Communities To Support Healthy And Meaningful Ageing Friedrich Dieckmann and Christiane Rohleder Part 4. Intellectual Disability As A Case Example 19. The Emergence Of Ageing With Long-Term Disability Populations Philip McCallion, Lisa Ferretti, and Mary McCarron 20. Health And Wellness Among Persons Ageing With Intellectual Disability Darren McCausland, Philip McCallion, and Mary McCarron 21. Retirement For People With Intellectual Disability: Policy, Pitfalls, And Promising Practices Christine Bigby 22. Family Caregiving For Adults Ageing With Intellectual And Developmental Disabilities Tamar Heller, Sumithra Murthy, and Catherine Keiling Arnold 23. Ageing With Intellectual Disability In Sweden: Participation And Self Determination Mia Jormfeldt and Magnus Tideman 24. Towards Untangling The Ageing Riddle In People With Intellectual Disabilities: An Overview Of Research On Frailty And Its Consequences Josje D. Schoufour, Dederieke Maes Festen, Alyt Oppewal, and Heleen M. Evenhuis 25. How To Avoid Early Frailty In People With Intellectual Disabilities? Heleen M. Evenhuis, Josje D. Schoufour, Alyt Oppewal, and Dederieke Festen 26. Dementia Care For Persons Ageing With Intellectual Disability: Developing Non-Pharmacological Strategies For Support Karen Watchman and Kate Mattheys 27. End-Of-Life Care For Adults With Intellectual Disabilities Teresa Moro and Jacqueline McGinley Part 5: Policies to Support Persons Aging with Disability 28. Responding To Changing Workforce Realities: One Profession’s Experience Fintan Sheerin, Philip McCallion, and Mary McCarron 29. Ageing In Place In Group Homes: An Australian Context Tal Araten-Bergma and Christine Bigby 30. Support, Service Policies, And Programs For Persons Ageing With Disabilities In Korea Kyung Mee Kim and Seung Hyun Roh 31. Trends In Integrating Long-Term Services And Supports In The United States Michelle Putnam and Caitlyn E. Coyle 32. Access To Assistive Technology In Canada Rosalie H. Wang and Michael G. Wilson 33. Ageing With Disability: Using Financial Mechanisms To Facilitate Intersectoral Collaboration David McDaid and A-La Park 34. Enabling A Good Old Age For People Ageing With Disability: Reflections On Progress Christine Bigby and Michelle Putnam
Michelle Putnam is a Professor at the School of Social Work at Simmons University in Boston, Massachusetts. She has studied the experience of ageing with disability, focusing on social care and public policy, for over 20 years. Her work has forwarded efforts to bridge the fields of ageing and disability.
Christine Bigby is a Professor of Social Work and Director of the multidisciplinary Living with Disability Research Centre at La Trobe University, Melbourne, Australia. Her research is focused on building the evidence base for programmes and practice that support the social inclusion of people with intellectual disabilities.
‘The Handbook on Ageing with Disability is a long-awaited gem of information, research and insights into an area growing in importance but too long ignored. The co-authors are pioneers in this field and they have brought together an impressive international caste of experts. The myriad dimensions and the nuances of aging with a disability, whether intellectual, cognitive, physical, visual, or chronic – are brought together in a masterful collection of prescient chapters. This Handbook is destined to be the "bible" for all of us aging into and with various forms of limitations and disabilities and seeking the latest analysis, data, trends and understanding of this complex yet personal concern.’
Fernando M. Torres-Gil, UCLA Professor of Social Welfare and Public Policy
‘This Handbook fills a major gap in the knowledge base required to bridge the fields of aging with disability, certainly one of the major challenges for humankind in the XXI Century. The range of topics covered and populations discussed demonstrates the heterogeneity of the aging with disability population and the need for greater attention to common issues in these two areas of research, support and care. This book brilliantly culminates the extensive work the editors have led on this topic over the last 20 years.’
Luis Salvador-Carulla, Head of the Centre for Mental Health Research at the Australian National University