1st Edition

Locked-in Syndrome after Brain Damage Living within my head

108 Pages 6 B/W Illustrations
by Routledge

108 Pages 6 B/W Illustrations
by Routledge

108 Pages 6 B/W Illustrations
by Routledge

The newest title in the series Survivor Stories , this book tells the story of Paul Allen, a photographer who likes opera and was a good baritone singer. At the age of 56 he sustained a stroke that left him paralysed and speechless. He has Locked-In Syndrome (LIS), a rare consequence of brain damage. Although Paul is fully conscious and his cognitive abilities are intact, he is unable to move or... Read more

Foreword Steven Laureys

1. What Is Locked-In Syndrome? What Causes It? Who Is Most at Risk? Do People Recover from this Condition?

2. Accounts of People with LIS

3. Neuropsychological Assessments of Patients with LIS: How Normal Is Their Cognitive Functioning?

4. Is it Always Easy to Diagnose LIS?

5. Paul’s journey

6. An Interview with Liz, Paul’s Wife

7. Treatment at the Raphael Hospital

8. Interviews with Paul’s Friends

9. Paul’s Continuing Involvement with Music

10. Quality of Life for People with LIS, and Assessing Capacity

11. Ethical Issues in Locked-In Syndrome

12. Summary and Conclusions

Biography

Barbara A. Wilson is a clinical neuropsychologist who has worked in brain injury rehabilitation for 40 years. She edits the journal Neuropsychological Rehabilitation. This is her 27th book.

Paul Allen has lived with Locked-In Syndrome since 2012. Before his stroke he was a singer, photographer, computer programmer and project manager.

Anita Rose is the Consultant Neuropsychologist and Director of Therapies at the Raphael Hospital, UK and also works as an independent consultant across the globe. She has researched and published extensively on brain injury, chronic neurological conditions and multiple sclerosis.

Veronika Kubickova is a trainee clinical psychologist at the University of Oxford, UK. Previously having worked as an assistant psychologist in neuro-rehabilitation, she has helped people re-adjust to life after brain injury. After qualifying, she plans to work with refugee children who have experienced trauma.