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The sequencing of the entire human genome has opened up unprecedented possibilities for healthcare, but also ethical and social dilemmas about how these can be achieved, particularly in developing countries. UNESCO’s Bioethics Programme was established to address such issues in 1993. Since then, it has adopted three declarations on human genetics and bioethics (1997, 2003 and 2005), set up numerous training programmes around the world and debated the need for an international convention on human reproductive cloning.
Negotiating Bioethics presents Langlois' research on the negotiation and implementation of the three declarations and the human cloning debate, based on fieldwork carried out in Kenya, South Africa, France and the UK, among policy-makers, geneticists, ethicists, civil society representatives and industry professionals. The book examines whether the UNESCO Bioethics Programme is an effective forum for (a) decision-making on bioethics issues and (b) ensuring ethical practice. Considering two different aspects of the UNESCO Bioethics Programme – deliberation and implementation – at international and national levels, Langlois explores:
Foreword. Acknowledgements. Abbreviations. 1. Introduction 2. Bioethics: Human Genetic and Biomedical Research Ethics at UNESCO and Beyond 3. Global Governance: A Conceptual Framework for Analysing Bioethics at UNESCO 4. Deliberating Bioethics: UNESCO’s Standard Setting Activities 5. Implementing Bioethics: UNESCO’s Efforts to Realise and Enforce the Declarations 6. Contextualising Bioethics: The Declarations in Kenya and South Africa 7. Contextualising Bioethics: Mapping Progress in Kenya and South Africa 8. Conclusion.Appendix I: Interviews. Notes. References
The books in this series, all based on original research, explore the social, economic and ethical consequences of the new genetic sciences. The series is based in the Cesagene, one of the centres forming the ESRC’s Genomics Network (EGN), the largest UK investment in social-science research on the implications of these innovations. With a mix of research monographs, edited collections, textbooks and a major new handbook, the series is a valuable contribution to the social analysis of developing and emergent bio-technologies.