The particular needs of people with progressive long-term neurological conditions - including Parkinson's Disease, Motor Neurone Disease (MND), Multiple Sclerosis (MS) and Huntington's disease - may make care delivery and planning the last stages of life ethically, practically and clinically challenging. However, only in recent years has serious attention been paid to palliative care approaches for people affected by conditions other than cancer. This unique and comprehensive book builds bridges between palliative and neurological care expertise, recognising that such people may require intensive input from rehabilitation and therapy teams at the same time as complex symptom management and supportive non clinical care. Its comprehensive guidance on managing these complex conditions aims to enable those living with them to enjoy the best quality of life for as long as possible.
Progressive neurological conditions: epidemiological and clinical picture. The principles and practice of palliative care. Supportive and palliative care needs in progressive long-term neurological conditions: an overview. Symptom relief in palliative neurological care. Challenges to communication. Patients and families. Palliative initiatives in neurological care: the PINC programme. Ethical considerations in the palliative care of patients with neurological disorders. Bereavement Support.