Participation in Health and Welfare Services : Professional Concepts and Lived Experience book cover
1st Edition

Participation in Health and Welfare Services
Professional Concepts and Lived Experience

ISBN 9780367236410
Published February 5, 2019 by Routledge
268 Pages 11 B/W Illustrations

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Book Description

Today, healthy ageing and active, meaningful lives are core values and aims for international and national health policies. Health services are challenged to ensure that the recipients of their services are active participants in their own care and beyond. Participation allows patients to become less dependent on healthcare providers, increasing their control over their own treatment and health. Increasingly, the idea of ‘participation’ is shifting, from participation in services to participation in mainstream society.

This book examines the concept of participation, as well as the different meanings it takes on in the context of health and welfare services. It asks how services can enable and stimulate participation outside of those services. The contributions in this volume particularly focus on participation as engagement in daily life and ‘everyday life’ in order to develop the field of participation beyond the sphere of health and social care services. This book will appeal to researchers in the fields of health and social care, social services, occupational therapy and the sociology of health and illness. It will be of interest to practitioners of health and welfare services.

Table of Contents

List of contributors

Chapter 1. Introduction and rationale

Arne H. Eide, Staffan Josephsson, Kjersti Vik and Nils Erik Ness

Chapter 2. International classification of functioning, disability and health in the context of participation

Annelie Schedin Leiulfsrud

Chapter 3. Participation from the perspective of the user: from subjective experiences to lived experiences

Margareta Lilja and Staffan Josephsson

Chapter 4. Environmental determinants of quality of participation in healthcare settings among people with impairments and limitations

Jessica Dashner, Holly Hollingsworth, Jade Gross and David B. Gray

Chapter 5. Culture and participation

Skender Redzovic and Arne H. Eide

Chapter 6. A participatory approach to services and support

Peter Beresford

Chapter 7. Participation in the context of service delivery: a comparison between the views held by older service recipients and service providers

Aud Elisabeth Witsø and Kjersti Vik

Chapter 8. Participation at the interface with health and welfare services

Lisbeth Kvam, Heidi Pedersen and Aud Elisabeth Witsø

Chapter 9. The ICF and collaboration about participation

Ebba Langum Bredland and Kjersti Vik

Chapter 10. Parents' participation in child welfare investigation processes

Turid Midjo

Chapter 11. Shout out who we are! How might engagement in cultural activities enhance participation for people in everday occupations for people in vulnerable life situations?

Sissel Horghagen and Clare Hocking

Chapter 12. Impacts on work participation of people with mental health disability

Klara Jakobsen, Rosemary Lysaght and Terry Krupa

Chapter 13. Mental health, participation and social identity

Toril Anne Elstad and Gundi Schrötter Johanssen

Chapter 14. Digitalised communication and social interaction: new opportunities for young disabled people's participation

Sylvia Söderstrøm and Helena Hemmingson

Chapter 15. Participation in everyday life as lived negotiations: challenges and opportunities within a situated understanding of participation

Sissel Alsaker, Staffan Josephsson and Virginia Dickie

Chapter 16. Barriers to participation: time, social and physical obstacles for students with disabilities

Eva Magnus, Ulla Kroksmark and Kersti Nordell 

Chapter 17. Participation and inclusion: mental health service users' lived experience – an international study

Elizabeth McKay, Deirdre Mahon, Grainne Donellan, Kirsti Haracz, Sarah Sheldon and Susan Ryan


Staffan Josephsson, Arne H. Eide and Kjersti Vik


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Arne H. Eide, Norwegian University for Science and Technology and SINTEF Technology and Society, Norway.

Staffan Josephsson, Norwegian University for Science and Technology and Karolinska Institutet, Sweden.

Kjersti Vik, Norwegian University for Science and Technology.