Pediatric Life Care Planning and Case Management provides a comprehensive and unique reference that goes beyond the clinical discussion to include legal and financial aspects, life expectancy data, and assistive technology. It also includes case samples of actual plans related to specific conditions.
The book is divided into five parts:
- Normal Growth and Development of Children describes the normal growth and development and the cognitive and psychosocial development of children.
- The Roles of the Life Care Plan Team details the roles of members of a life care plan team, from the pediatric care manager and life care planner to the vocational rehabilitation consultant, among others.
- Chronic Conditions and Disability States offers guidelines for life care planning for children with a wide range of chronic health conditions and disabilities, including traumatic injuries and organ transplants.
- Forensic Considerations examines life care planning in legal cases, life expectancy issues, and life care plan foundation strategies and requirements.
- Special Issues discusses assistive technology, medical homes, funding sources, and ethical issues in caring for children with special needs—including a mother’s perspective on caring for her son.
With contributions from highly respected professionals, this text provides a guide for life care planners, health-care professionals, education specialists, insurance decision makers, attorneys, and families who work with children with special health-care needs.
Table of Contents
Normal Growth and Development of Children
Normal Growth and Development; Pasquale J. Accardo
Cognitive and Psychosocial Development of Children; Carol Walker
The Roles of the Life Care Plan Team
The Role of the Pediatric Care Manager in Life Care Planning; Nancy J. Bond and Lynne P. Trautwein
The Role of the Life Care Planner in Pediatric Life Care Planning; Susan Riddick-Grisham
The Role of the Pediatric Physiatrist in Life Care Planning; Charles R. Law and Dennis J. Matthews
The Role of the Pediatric Neuropsychologist in Life Care Planning; Jeffrey S. Kreutzer, Emilie E. Godwin, Nancy H. Hsu, and Laura A. Taylor
The Role of the Pediatric Neurologist in Life Care Planning; Georgann Ferrone and Phillip L. Pearl
The Role of the Child Clinical Psychologist in Life Care Planning; Ann V. Deaton and Josie Castaldi
The Role of the Developmental Pediatrician in Life Care Planning; Pasquale J. Accardo and Jennifer Accardo
The Role of the Occupational Therapist in Life Care Planning; Jill Poth Lack
The Role of the Physical Therapist in Life Care Planning; Gina Ricardo Cowan and Julie Good
The Role of the Speech-Language Pathologist in Life Care Planning; Carolyn Wiles (Watkins) Higdon and Laura (Lollie) Vaughan
The Role of the Vocational Rehabilitation Consultant in Life Care Planning; Ann T. Neulicht and Debra E. Berens
The Role of the Special Needs Trust Administrator in Life Care Planning; Amy McCormick and Allison J. Bren
Chronic Conditions and Disability States
Life Care Planning for the Child with a Spinal Cord Injury; Terry Winkler and Laura M. Deming
Life Care Planning for Children with Neurodevelopmental Disabilities; Jacob A. Neufeld, Eugenio Monasterio, Laura A. Taylor, Susan Riddick-Grisham, and Lee A. Livingston
Life Care Planning for the Child with Asthma and Other Chronic Respiratory Conditions; Susan G. Engleman
Life Care Planning for the Child with Acquired Brain Injury; Sherilyn W. Driscoll, Virmarie Quinones-Pagan, Ronald C. Savage, and Susan Riddick-Grisham
Life Care Planning for Children with Diabetes; Amy M. Sutton
Life Care Planning for the Child with a Brachial Plexus Injury; Scott H. Kozin and Mona Goldman Yudkoff
Life Care Planning for the Pediatric Burn Patient; Ruth Rimmer and Daniel Martin Caruso
Life Care Planning for Children and Adolescents with Mental Health Disorders; Conni J. Wells and James C. Taylor
Life Care Planning for the Child with an Amputation; Robert H. Meier III
Life Care Planning for Pediatric Solid Organ Transplantation; Dan M. Bagwell and Jennifer Milton
Life Care Planning for Children with Genetic Disorders; G. Bradley Schaefer and Bruce A. Buehler
Life Care Planning for the Visually Impaired Child; Stacey R. Helvin and Amy M. Sutton
Life Care Planning for Children with Hearing Impairments; Carolyn Wiles (Watkins) Higdon and William D. Mustain
Bilirubin Encephalopathy/Kernicterus Implications for Life Care Planning; Steven M. Shapiro, Laura M. Deming, Susan Riddick-Grisham and Ruth Klionski Shapiro
Life Care Planning for the Child with an Artificial Airway or Requiring Long-Term Mechanical Ventilatory Assistance; Susan G. Engleman and Laura M. Deming
Use of the Life Care Plan in a Lawsuit Involving a Child; Bruce H. Stern
Life Care Plans from a Legal Defense Perspective; Gary W. Brown and Adam W. Smith
Use of the Life Care Planning Expert in Legal Cases; Connie Sunday and Terry Kennedy Arnold
Establishing Foundations for Life Care Plan Development; Paul M. Deutsch
Life Expectancy; Jamie L. Pomeranz, Nami S. Yu, and Linda R. Shaw
Special Education Law and the Pediatric Patient; Sharon S. England
Essential Concepts in Pediatric Assistive Technology; Thomas Wayne King, Adam Gideon King, and Debra Raye King
The Role of the Medical Home in Life Care Planning; Shih-Ning Liaw
Considerations for Medical Equipment in a Pediatric Life Care Plan; Paul Amsterdam
Ethical and Moral Issues in Caring for Children with Special Needs; Teresa A. Savage
Understanding Medicaid and Other Funding Sources; Mary Anne Ehlert and Donald G. Olsen
Continuing Life with Noah: A Mother’s Perspective; Susan J. Redmon
Susan Riddick-Grisham, RN, BA, CCM, CLCP, has a private case management and life care planning practice and is the founder of the Care Planner Network, a nonprofit organization. In 2006, she received the Lifetime Achievement Award from the sponsors of the annual International Life Care Planning Symposium.
Laura M. Deming, MS, RN, PNP-BC, CCM, CLCP, is a practicing pediatric nurse practitioner with a consulting business that includes life care planning services. She received the Case Management Society of America’s Award of Service Excellence in 2004. Laura is also the mother of a pre-school child with special needs.