Published in 2004, this collection will encourage and foster informed discussion of key issues as society comes to grips with the implications of genetic engineering, the mapping and sequencing of the human genome, and the advent of the post-genomic era. The contributors are prominent social scientists, health specialists, journalists, bioethicists and commercial representatives from the UK, Finland, Germany, Holland and Norway who are at the leading edge of current research. the book will therefore appeal to the interested public, health and other professionals, teachers and students.
This book was originally published as part of the Cardiff Papers in Qualitative Research series edited by Paul Atkinson, Sara Delamont and Amanda Coffey. The series publishes original sociological research that reflects the tradition of qualitative and ethnographic inquiry developed at Cardiff. The series includes monographs reporting on empirical research, edited collections focussing on particular themes, and texts discussing methodological developments and issues.
Table of Contents
1. Introduction: What's New bout the 'New Genetics'?, Peter Glasner and Harry Rothman. Part I: Literacy, Public Understanding and the Media. 2. The Gene Shop at Manchester Airport, Mairi Levitt. 3. Public Understanding of Genetic Engineering in Germany, Jurgen Hampel. 4. Predictive Medicine, Genetics and Schizophrenia, John Turney and Jill Turner. Part II: Commercialization and Health. 5. Pharmacogenetics: Implications for Drug Development, Patients and Society, Alun McCarthy. 6. The Use of Large Biological Sample Collections in Genetics Research: Issues for Public Policy, Paul Martin and Jane Kaye. Part III: Gen-ethics: Human Genetic Banking. 7. DNA Sampling and Banking in Clinical Genetics and Genetic Research, Kare Berg. 8. Human Genetic Banking and the Limits of Informed Consent, Garrath Williams and Doris Schroeder. 9. Regulation and Social Perceptions of Genetic Data Banking in Germany, Juergen Simon and Susanne Braun. Part IV: Genetic Screening: Genetic and Nongenetic Medical Information: Is there a Moral Difference in the Context of Insurance?, Veikko Launis. 11. New Practices of Screening in the Field of Cancergenetics: A Co-evolutionary Perspective, Dirk Stemerding and Annemiek Nelis. 12. Lumping and Splitting Revisited: Or what Happens when the New Genetics Meets Disease Classification, Adam M. Hedgecoe. Part V: Cloning and Xenotransplantation. 13. What We Know and What We Don't Know about Cloning and Society, Sarah Franklin. 14. Containing Contradictions: Debating Nature, Controversy and Biotechnology, Nik Brown. 15. Constructing the Scientific Citizen: Science and Democracy in the Biosciences, Alan Irwin. 16. Conclusion, Peter Glasner.
Peter Glasner works at the ESRC Centre for the Economic and Social Aspects of Genomics at Cardiff University, UK.
’Debate over the implications of the "new" genetics needs to be informed by a critical and robust analysis of precisely what is new about this field. This international collection of papers, edited by a highly-respected contributor to the area, provides a thorough and extremely valuable exploration of this question.’ Andrew Webster, York University, UK '...a significant addition to a field that is growing in social and economic relevance...Each of the issues depicted in this volume deserves careful scrutiny in order to ensure desirable developments and a useful framework for all stakeholders and professionals, as well as for the improvement of the public understanding of these issues.' Biosocial Science