1st Edition

Rethinking Disability and Human Rights Participation, Equality and Citizenship

Edited By Inger Marie Lid, Edward Steinfeld, Michael Rembis Copyright 2023
    188 Pages 9 B/W Illustrations
    by Routledge

    This book examines the role of disability in the right to political and social participation, an act of citizenship that many disabled people do not enjoy.

    The disability rights movement does not accept the use of disability to create limits on citizenship, which poses challenges for contemporary societies that will become ever greater as the science and technology of enhancing human abilities evolves. Comprised of eight chapters, three interludes, and a postscript written by leading scholars and disability rights activists, the book explores citizenship for people with disabilities from an interdisciplinary perspective using the United Nations Convention on the Rights of Persons with Disabilities (CRPD) as a point of departure and the concept of universal design as a strategy for actualizing full citizenship for all. Situating disability in its historical and cultural contexts, the authors offer directions for rethinking citizenship, including implications for access to the built environment, information and communication systems, education, work, community life and politics.

    This book will be of interest to all scholars and students working in disability studies, planning, architecture, public health, rehabilitation, social work, and education.

    Introduction: Rethinking citizenship and disability
    Inger Marie Lid, Edward Steinfeld, and Michael Rembis

    Part One

    Chapter One - Exploring the relationship between citizenship and universal design
    Inger Marie Lid

    Chapter Two - Veterans from Life: Rehabilitation as Compensation
    Halvor Hanisch

    Interlude One - Life is possible
    Stig Langvad

    Chapter Three – Rethinking utopia: posthumanism, transhumanism, and disability
    Jan Grue

    Chapter Four - Mad Citizenship
    Michael Rembis

    Part Two

    Chapter Five - Conditions for religious citizenship for people with intellectual disabilities: Cases from Norway and Slovakia
    Dmitry Lukash and Anna Chalachanová

    Interlude Two – "Symbiotic citizenship" and a struggle for the right of life as frames for interpreting the 40-day disability protest in the Polish Parliament
    Natalia Pamula and Magda Szarota

    Chapter Six - The space of accessibility and universal design
    Edward Steinfeld

    Chapter Seven – Enabling equal citizenship: Responses from civil society
    Ingunn Moser and Inger Marie Lid

    Interlude Three - Global Disability Summit: How to realize "nothing without us"
    Gagan Chhabra

    Chapter Eight - Universal human rights and universal design for people with disabilities: Challenges and lessons from Sub-Saharan Africa
    Korydon Smith

    Postscript – Dialogue between Rosemarie Garland-Thomson and Inger Marie Lid
    Rosemarie Garland-Thomson and Inger Marie Lid


    Inger Marie Lid is a Professor of Public Health and Rehabilitation at VID Specialized University. Her research interests include ethics, citizenship, universal design accessibility, and Human Rights. Lid has authored and edited many books, chapters and articles. Recent publications include "The significance of relations. Rethinking autonomy in a disability perspective" in Lived Citizenship for Persons in Vulnerable Life Situations. Theories and Practices (Scandinavian University Press). She is currently engaged in research on inclusion in higher education.

    Edvard Steinfeld, Arch. D., is a SUNY Distinguished Professor of Architecture and Director of the Center for Inclusive Design and Environmental Access at the School of Architecture, University at Buffalo, State University of New York. His research interests include accessibility, universal design, and design for aging. He is currently engaged in research and public education on design for gender diversity

    Michael Rembis is the Director of the Center for Disability Studies and an Associate Professor in the Department of History at the University at Buffalo (SUNY). Rembis has authored or edited many books, articles, and book chapters. He is currently completing a book entitled, Writing Mad Lives - in the Age of the Asylum. He is the coeditor of The Oxford Handbook of Disability History.