1st Edition
Routledge International Handbook of Participatory Approaches in Ageing Research
This Handbook presents established and innovative perspectives on involving older adults as co-creators in ageing research. It reorients research and policy toward more inclusive and adequate designs that capture the voices and needs of older adults.
The Handbook:
- introduces types of participatory approaches in ageing research;
- highlights key methodological aspects of these approaches;
- gives insights from projects across different cultural contexts and academic disciplines, showing ways in which older participants can be involved in co-designing different stages of the research cycle;
- examines key issues to consider when involving older participants at each step of the research process;
- includes the voices of older adults directly;
- draws out conclusions and points ways forward for future research.
This Handbook will be essential reading for researchers and students interested in the field of ageing and/ or participatory methods, as well as for those policy stakeholders in the fields of ageing and demographic change, social and public policy, or health and wellbeing who are interested in involving older adults in policy processes. It will be useful for third-sector advocacy organizations and international non-governmental and public agencies working either in citizen involvement/participation or the ageing sector.
List of contributors
Foreword
1 Participatory approaches in ageing research: An Overview
Anna Urbaniak and Anna Wanka
PART I: Methodological aspects of participatory approaches in ageing research
2 Role of reflexivity in challenging participation inequality in participatory approaches with older adults
Anna Urbaniak
3 The willingness of older adults to engage in participatory research: Empirical Findings from Switzerland
Alexander Seifert
4 Involving older adults in the data analysis process
Julia Nolte and Hamid B. Turker
5 Participatory research and development approaches in applied ageing research
Birgit Aigner-Walder, Marika Gruber, Gabriele Hagendorfer-Jauk, Daniela Krainer, Johannes Oberzaucher and Christine Pichler
PART II: Designing research together with older adults
6 Setting the research agenda together as a form of productive ageing. Rationale and exemplary cases
Mariano Sánchez and Raúl López-López
7 Co-creating culturally nuanced social measures with indigenous elders
Charles Waldegrave, Chris Cunningham, Catherine Love, Giang Nguyen and Monica Mercury
8 Tensions in transformation: Participatory Approaches in Sustainable Energy Technology Projects in the UK and India
Carol Ann Maddock, Vanessa Burholt, Deborah Jane Morgan, Kushboo Ahire and Charles Musselwhite
PART III: Collecting data together with older adults
9 Promenade parlante: Intergenerational Dialogue, Urban Scenography, and Co-Creation
Cynthia Imogen Hammond, Shauna Janssen, and Eric Craven
10 Older individuals’ active participation in data collection in diverse settings in South Africa
Vera Roos
11 Challenges and opportunities of new product co-creation with older consumers
Krzysztof Klincewicz, Katarzyna Dębska, Katarzyna Król, Marcin Skupiński and Magdalena Zatorska
PART 4: Analysing and validating results together with older adults
12 Experience of member check with older adults in non-participatory-research-culture
Irena Zemaitaityte, Jolanta Pivorienė and Agata Katkoniene
13 “We talked about years that I experienced as well!” – the role of age in the participatory design of phone befriending services in Estonia
Tiina Tambaum
14 When care is moving in – participatory approaches to elicit needs and desires when healthcare has become a natural part of your daily life
Giana Carli Lorenzini and Johanna Persson
15 Older adults in research: A participatory approach to sexuality and intimacy based on an example from Poland
Mariola Bieńko and Damian Kalita
PART 5: Disseminating results together with older adults
16 Promoting civic participation: Comparing three co-produced models of lifelong learning and cultural engagement in the UK
Anna Goulding and Thomas Scharf
17 Making graphic magazines with people living with dementia: The case for participatory dissemination
Sarah Campbell and Andrew Clark
18 The later life audio and radio co-operative: Creating sustainable: communities from participatory action research
Arlind Reuter and Thomas Scharf
19 The living library – a participatory approach to societal research impact
Bram Vanhoutte and Neil Dymond-Green
PART 6: Doing the whole research process together
20 The Belgian ageing studies: Peer research as an instrument to empower older people
Nico De Witte, Dominique Verté and Emily Verté
21 A service provider approach to rights-based research
Meg Polacsek and Tabitha Porter
22 Patient partner engagement in dementia research during the COVID-19 pandemic and beyond
Lillian Hung and Mario Gregorio
PART 7: Voices and experiences of older co-researchers
23 Working together to research the everyday lives of people living with dementia and those supporting them
Diane Seddon, Teresa (Dory) Davies and Hannah Jelley
24 Co-creating research: Co-researchers’ parallel conversations with Māori elders
Charles Waldegrave and Monica Mercury
25 Co-creating research: Co-researchers’ parallel conversations from the participatory action research project ‘CareComLabs’
Shkumbin Gashi and Erich Kohler
26 Doing research together – insights from the intergenerational project “DigiGen” in Germany
Anna Wanka, Miranda Leontowitsch, Friedrich Wolf and Horst Schöberl
27 Co-creating research: Co-researchers’ parallel conversations from the project ‘SEVEN – Socially Excluded Older Adults: Voices and Experiences’
Charlotte Gruber and Katrin Lehner
PART 8: Future perspectives in the field of participatory approaches in ageing research
28 Participation for mission-oriented innovation: A governance perspective
Julian Stubbe, Anne Busch-Heizmann and Maxie Lutze
29 Employing citizen science to understand the contemporary needs of older adults accessing and using technology in a pandemic
Hannah R. Marston, Deborah Jane Morgan, Gemma Wilson-Menzfeld, Jessica Gates, Carol Ann Maddock, Elisabeth J., Jenny Philips, Gavin Bailey, and Julie Nicholson
30 Co-producing knowledge: Reflections from a community-based participatory research project on caring communities to strengthen ageing in place
Heidi Kaspar, Claudia Müller, Shkumbin Gashi and Dennis Kirschsieper
31 Epistemology and methodology of participatory research with older adults: A comparison of four age-friendly city national experiences
Myriam Leleu, Mario Paris, Hugo Bertillot, Suzanne Garon, Robert Grabczan, Olivier Masson, Thibauld Moulaert and Damien Vanneste
32 Participatory approaches in ageing research: Future perspectives
Anna Urbaniak and Anna Wanka
Index
Biography
Anna Urbaniak is a social sciences researcher with expertise in life-course transitions, the re/production of social inequalities across the life course, and participatory approaches in ageing research. She is a founder of PAAR: Research Network on Participatory Approaches in Ageing Research and a chair of COST Action CA22167 on Participatory Approaches with Older Adults (PAAR- net). She is also a co-chair of the Research Network on Ageing in Europe (European Sociological Association). She is working as a Postdoctoral Researcher at the University of Vienna (Austria) and Jagiellonian University (Poland), and as an Assistant Professor at Cracow University of Economics (Poland).
Anna Wanka is a sociologist and critical gerontologist interested in the social construction of age. Her areas of expertise comprise the social practices of un/doing age, life course transitions/retirement and the re/production of social inequalities across the life course, ageing and technologies, age-friendly cities and communities, mixed-methods, and participatory research. She is co-founder of PAAR: Research Network on Participatory Approaches in Ageing Research and a co-chair of COST Action CA22167 on Participatory Approaches with Older Adults (PAAR- net). She is working as a research group leader at Goethe University Frankfurt/Main, Germany.
