1st Edition
Sickle Cell Disease in Sub-Saharan Africa Public Health Perspectives
Introduction
Baba Inusa, Kanayo Nwankwo, Nkechikwu Azinge-Egbiri and Bukola Bolarinwa
Chapter 1 – Bridging the Gap
Maria Berghs
Chapter 2 – Social Determinants of Severity in Sickle Cell Disorders
Maria Berghs, Bassey Ebenso and Bolanle Ola
Chapter 3 – Health-related quality of life of children and adolescents with sickle cell disease
Christina Constantinou and Nicola Payne
Chapter 4 – The Challenge of Data with SCD: A Public Health Crisis
Scott Adamu-Oyegun
Chapter 5 – Examining the Limited Global Focus on Sickle Cell Disorder and Its Implications for Nigeria’s Legal Framework: A Social Constructionism Perspective
Nkechi Azinge-Egbiri, Jake Okechukwu Effoduh and Bukola Bolarinwa
Chapter 6 – Sickle Cell Disorder and Its Psychosocial Burdens in Africa
Maria Berghs, Bassey Ebenso, Bolanle Ola and Olibamoyo Olushola
Chapter 7 – The Critical Importance of Global Collaboration in SCD Advocacy and Management
Maria Berghs
Chapter 8 – Reducing sickle cell disease stigma in Africa: Successes and Challenges
Sophie Uyoga
Chapter 9 – Support Activism - The Role of NGOs And Policy Makers
Elmer Chukwunoyenim Aluge and Mahmud Abdullahi
Chapter 10 – Public Health and Social Implications for Management and Control of Sickle Cell Disease in Developing Countries
Godpower Omoregie
Biography
Baba Inusa, MBBS (ABU 1984), FMCPaed (Nigeria, 1992), FRCPCH (UK, 1997), is Professor of paediatric haematology, Evelina London Children’s Hospital, Guy’s and St Thomas NHS Foundation Trust.
Kanayo Nwankwo, MD, is the Chief Resident and a lifespan sickle cell advocate, currently serving at Brookdale University Hospital in Brooklyn, NY.
Nkechikwu Azinge-Egbiri, LLB (Hons), BL, LLM, PhD (Warwick), is a Lecturer at the School of Law, Lancaster University and Founder of the Sickle Cell Aid Foundation (SCAF), a youth-led NGO she established to raise awareness of Sickle Cell Disease (SCD) and support those living with it.
Bukola Bolarinwa is a qualified legal practitioner with an LLM in International Economic Law from the University of Warwick and LLB from the University of Leicester.
