As an essential and emerging practice, Pediatric palliative care seeks to prevent and relieve suffering for children with life-threatening conditions. Palliative care teams are composed of providers of various disciplines, including social workers, who collaborate to address the medical, social-emotional, and spiritual needs of the child, and their families. Social workers are especially accustomed to interdisciplinary care and may counsel, provide resources, facilitate communication, and promote person- and family-centered practices that are the basis of effective pediatric palliative care. This book presents practice strategies, experiential knowledge, and research related to practicing in─collaborative teams, ICU settings, and hospice. It also presents research that is informed by the perceptions and perspectives of bereaved parents, parents who have suffered a stillbirth, and parent caregivers of children with life-limiting illness. This book highlights the unique role social workers play, within care teams and in relationship with children who have life-limiting illness, and their families.
This book was originally published as a special issue of the Journal of Social Work in End-of-Life & Palliative Care.
Table of Contents
1. Introduction Barbara L. Jones
2. Learning to Be: Reflections of a Social Work Student on a Pediatric Hospice Internship Martha Vargas and Noam Ostrander
3. Team Collaboration in Pediatric Palliative Care Stacy S. Remke and Martha M. Schermer
4. Palliative Care in the Pediatric ICU: Challenges and Opportunities for Family-Centered Practice Ardith Doorenbos, Taryn Lindhorst, Helene Starks, Eugene Aisenberg, J. Randall Curtis, and Ross Hays
5. Bereaved Parents’ Perspectives on Pediatric Palliative Care Rhonda Robert, Donna S. Zhukovsky, Riza Mauricio, Katherine Gilmore, Shirley Morrison, and Guadalupe R. Palos
6. ‘‘I’ll Never Forget Those Cold Words as Long as I Live’’: Parent Perceptions of Death Notification for Stillbirth Suzanne Pullen, Mindi Ann Golden, and Joanne Cacciatore
7. Informing Social Work Practice Through Research With Parent Caregivers of a Child With a Life-Limiting Illness Susan Cadell, Kimberly Kennedy, and David Hemsworth
Barbara Jones, PhD, is Associate Professor and Co-Director of the Institute for Grief, Loss, and Family Survival in the School of Social Work at The University of Texas at Austin, USA. Her current research focuses on issues of pediatric palliative care, grief and loss, young adult cancer survivorship, and the role of social work in health care.