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The Disability Bioethics Reader





ISBN 9780367220037
Published June 10, 2022 by Routledge
418 Pages 2 B/W Illustrations

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Book Description

The Disability Bioethics Reader is the first introduction to the field of bioethics presented through the lens of critical disability studies and the philosophy of disability.

Introductory and advanced textbooks in bioethics focus almost entirely on issues that disproportionately affect disabled people and that centrally deal with becoming or being disabled. However, such textbooks typically omit critical philosophical reflection on disability. Directly addressing this omission, this volume includes 36 chapters, most appearing here for the first time, that cover key areas pertaining to disability bioethics, such as:

  • state-of-the-field analyses of modern medicine, bioethics, and disability theory
  • health, disease, and the philosophy of medicine
  • issues at the edge- and end-of-life, including physician-aid-in-dying, brain death, and minimally conscious states
  • enhancement and biomedical technology
  • invisible disabilities, chronic pain, and chronic illness
  • implicit bias and epistemic injustice in health care
  • disability, quality of life, and well-being
  • race, disability, and healthcare justice
  • connections between disability theory and aging, trans, and fat studies
  • prenatal testing, abortion, and reproductive justice. 

The Disability Bioethics Reader, unlike traditional bioethics textbooks, also engages with decades of empirical and theoretical scholarship in disability studies—scholarship that spans the social sciences and humanities—and gives serious consideration to the history of disability activism.

Table of Contents

Part I: History, Medicine, and Disability

1. A Short History of Modern Medicine and Disability
Michael Rembis

2. Eugenics, Disability, and Bioethics
Robert Wilson

3. Theories of Disability
Joel Michael Reynolds

Part II: Bioethics: Past & Present

4. A Critical History of Bioethics
John Evans

5. Methods of Bioethics
Alison Reiheld

6. Disability Bioethics: From Theory to Practice
Rosemarie Garland-Thomson

Part III: Philosophy of Medicine & Phenomenology

7. Disability and the Definition of Health
Sean Aas

8. The Lived Experiences of Illness and Disability
Havi Carel

Part IV: Prenatal Testing and Abortion

9. Abortion, Disability Rights, and Reproductive Justice
Elizabeth Dietz

10. A Fatal Attraction to Normalizing: Treating Disabilities as Deviations from “Species-Typical” Functioning
Anita Silvers

11. Being Disabled and Contemplating Disabled Children
Jackie Leach Scully

12. The Wrongs of Wrongful Birth: Disability, Race, and Reproductive Justice
Desiree Valentine

Part V: Disability, The Life Course, and Well-Being

13. Disability, Ideology, and Quality of Life: A Bias in Biomedical Ethics
Ron Amundson

14. The Challenge of Chronic Pain
Emma Sheppard

15. Chronic Illness and Well-Being
Lydia Nunez Landry

16. Disability and Aging Studies: Obstacles and Opportunities
Erin Lamb

Part VI: Issues at the Edge & End of Life

17. Death, Pandemic, and Intersectionality: What the Failures in an End-of-Life Case Can Teach About Structural Justice and COVID-19
Yolonda Wilson

18. Disorders of Consciousness, Disability Rights, and Triage during the COVID-19 Pandemic: Even the Best of Intentions Can Lead to Bias
Joseph J. Fins

19. Bioethical Issues in Dementia and Alzheimer's Disease
Tia Powell

20. Between “Aid in Dying” and “Assisted Suicide”: Disability Bioethics and the Right to Die
Harold Braswell

21. Theorizing the Intersections of Ableism, Sanism, Ageism and Suicidism in Suicide and Physician-Assisted Death Debates
Alexandre Baril

Part VII: Disability, Difference, and Healthcare

22. Disability Bioethics and Race
Andrea Pitts

23. Bioethics and the Deaf Community
Teresa Blankmeyer Burke

24. Hunger Always Wins: Contesting the Medicalization of Fat Bodies
Anna Mollow

25. Trans Care within and against the Medical-Industrial Complex
Hil Malatino

Part VIII: Intellectual and Mental Disabilities

26. Defining Mental Illness & Psychiatric Disability
Laura Guidry-Grimes

27. Research Ethics and Intellectual Disability: Finding the Middle Ground between Protection and Exclusion
Kevin Mintz and David Wasserman

28. Inconvenient Complications to Patient Choice and Psychiatric Detention: An Auto-ethnographoc Account of Mad Carework
Erica Hua Fletcher

29. Disability Bioethics, Ashley X, and Disability Justice for People with Cognitive Impairments
Christine Wieseler

Part IX: Disability Bioethics: Connections & New Directions

30. Feminist Theorizing and Disability Bioethics
Lauren Guilmette

31. Disability Bioethics and Epistemic Injustice
Anita Ho

32. Disability Studies Meets Animal Studies
David Peña-Guzmán

Part X: The Ends of Medicine: Caring, Curing, and Justice

33. Improving Access within the Clinic
Nicole D. Agaronnik and Lisa I. Iezzoni

34. The Goals of Medical Technology
Joseph A. Stramondo

35. "Why insist on justice, why not settle for kindness?" Kindness, justice, and cognitive disability
Eva Feder Kittay

36. Selections of Brilliant Imperfection
Eli Clare

...
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Editor(s)

Biography

Joel Michael Reynolds is Assistant Professor of Philosophy and Disability Studies at Georgetown University, Senior Research Scholar in the Kennedy Institute of Ethics, Senior Advisor to The Hastings Center, and core faculty in Georgetown’s Disability Studies Program. Reynolds is author of The Life Worth Living: Disability, Pain, and Morality (University of Minnesota Press), the founder of The Journal of Philosophy of Disability, and co-founder of the Oxford Studies in Disability, Ethics, and Society book series from Oxford University Press.

Christine Wieseler is Assistant Professor of Philosophy at California State Polytechnic University, Pomona. Wieseler is author of articles published in Hypatia, IJFAB: International Journal of Feminist Approaches to Bioethics, and Social Philosophy Today as well as chapters in two edited book collections.