The Disability Bioethics Reader

Part I: History, Medicine, and Disability

1. A Short History of Modern Medicine and Disability
Michael Rembis

2. Eugenics, Disability, and Bioethics
Robert Wilson

3. Theories of Disability
Joel Michael Reynolds

4. A Critical History of Bioethics
John Evans

5. Methods of Bioethics
Alison Reiheld

6. Disability Bioethics: From Theory to Practice
Rosemarie Garland-Thomson

7. Disability and the Definition of Health
Sean Aas

8. The Lived Experiences of Illness and Disability
Havi Carel

9. Abortion, Disability Rights, and Reproductive Justice
Elizabeth Dietz

10. A Fatal Attraction to Normalizing: Treating Disabilities as Deviations from “Species-Typical” Functioning
Anita Silvers

11. Being Disabled and Contemplating Disabled Children
Jackie Leach Scully

12. The Wrongs of Wrongful Birth: Disability, Race, and Reproductive Justice
Desiree Valentine

13. Disability, Ideology, and Quality of Life: A Bias in Biomedical Ethics
Ron Amundson

14. The Challenge of Chronic Pain
Emma Sheppard

15. Chronic Illness and Well-Being
Lydia Nunez Landry

16. Disability and Aging Studies: Obstacles and Opportunities
Erin Lamb

17. Death, Pandemic, and Intersectionality: What the Failures in an End-of-Life Case Can Teach About Structural Justice and COVID-19
Yolonda Wilson

18. Disorders of Consciousness, Disability Rights, and Triage during the COVID-19 Pandemic: Even the Best of Intentions Can Lead to Bias
Joseph J. Fins

19. Bioethical Issues in Dementia and Alzheimer's Disease
Tia Powell

20. Between “Aid in Dying” and “Assisted Suicide”: Disability Bioethics and the Right to Die
Harold Braswell

21. Theorizing the Intersections of Ableism, Sanism, Ageism and Suicidism in Suicide and Physician-Assisted Death Debates
Alexandre Baril

22. Disability Bioethics and Race
Andrea Pitts

23. Bioethics and the Deaf Community
Teresa Blankmeyer Burke

24. Hunger Always Wins: Contesting the Medicalization of Fat Bodies
Anna Mollow

25. Trans Care within and against the Medical-Industrial Complex
Hil Malatino

26. Defining Mental Illness & Psychiatric Disability
Laura Guidry-Grimes

27. Research Ethics and Intellectual Disability: Finding the Middle Ground between Protection and Exclusion
Kevin Mintz and David Wasserman

28. Inconvenient Complications to Patient Choice and Psychiatric Detention: An Auto-ethnographoc Account of Mad Carework
Erica Hua Fletcher

29. Disability Bioethics, Ashley X, and Disability Justice for People with Cognitive Impairments
Christine Wieseler

30. Feminist Theorizing and Disability Bioethics
Lauren Guilmette

31. Disability Bioethics and Epistemic Injustice
Anita Ho

32. Disability Studies Meets Animal Studies
David Peña-Guzmán

33. Improving Access within the Clinic
Nicole D. Agaronnik and Lisa I. Iezzoni

34. The Goals of Medical Technology
Joseph A. Stramondo

35. "Why insist on justice, why not settle for kindness?" Kindness, justice, and cognitive disability
Eva Feder Kittay

36. Selections of Brilliant Imperfection
Eli Clare

Biography

Joel Michael Reynolds is Assistant Professor of Philosophy and Disability Studies at Georgetown University, Senior Research Scholar in the Kennedy Institute of Ethics, Senior Advisor to The Hastings Center, and core faculty in Georgetown’s Disability Studies Program. Reynolds is author of The Life Worth Living: Disability, Pain, and Morality (University of Minnesota Press), the founder of The Journal of Philosophy of Disability, and co-founder of the Oxford Studies in Disability, Ethics, and Society book series from Oxford University Press.

Christine Wieseler is Assistant Professor of Philosophy at California State Polytechnic University, Pomona. Wieseler is author of articles published in Hypatia, IJFAB: International Journal of Feminist Approaches to Bioethics, and Social Philosophy Today as well as chapters in two edited book collections.

"Covers an impressive range of topics. . . [and] a wealth of diversity in issues, perspectives, and arguments . . . . Overall, this book is an excellent resource, and should be considered by those designing university courses relating to bioethics [and] medical law and ethics."
Heloise Robinson in Medical Law Review

“The Disability Bioethics Reader provides a much-needed course correction for the field [of bioethics] and contains context that should be provided via graduate and undergraduate bioethics courses, medical school curricula, and continuing medical education courses. Practitioners, educators, and scholars alike would benefit from the authors’ careful consideration of the intersections between bioethics and disability.”                Heather Swadley, Lehigh University