1st Edition
The Lives of Children and Adolescents with Disabilities
This book will be of interest to undergraduates, postgraduates and researchers in disability studies, childhood studies, medicine and health sciences, and sociology. It also provides insights that will be of use and value to professionals working with disabled children and adolescents in education, health and in disability-specific services.
Opening with four narratives that offer the reader a window into the lived experience of disabled children, adolescents and their families, subsequent chapters explore a range of issues facing disabled children from early childhood through to late adolescence. Topics include family life, early intervention, inclusive and post-secondary education, the right to play, digital participation, the effects of labelling and matters relating to agency and sexuality.
With chapters discussing research from Australia, Canada, Ireland, Italy, Malta, Mexico, New Zealand, Sweden and the UK amongst others, this book:
- contributes to the existing body of knowledge about the lives of disabled children and adolescents, with a focus on socially created disabling factors
- provides the reader with analysis of issues affecting disabled children and adolescents according to different conceptual frameworks, national contexts and with regard to different types of impairments/disabilities
- highlights the main issues that confront disabled children and adolescents, their families and their allies in the early twenty-first century
- highlights the importance of actively listening to the perspectives of disabled children and adolescents
It provides a rich source of knowledge and information about the lives of disabled children and adolescents, and a variety of perspectives on how their lives are affected by material and non-material factors, social structures and cultural constructions.
Chapter One – The Lives of Children and Adolescents with Disabilities: An Introduction
Anne-Marie Callus and Angharad Beckett
Chapter Two – Kia ora from Ralph
Kate McAnelly
Chapter Three – Childhood: Magic or Misery? Childhood: Happy or Sad?
Rachel Adam-Smith
Chapter Four – The Tale of the Dancing Eyes
Solange Bonello
Chapter Five – The Trouble with ‘Normal’: Finding Hope Through Resistance
Miro Griffiths
Chapter Six – Disabled Children’s Active Participation in Early Childhood Education: A Story of Love, Rights and Solidarity from Aotearoa New Zealand
Michael Gaffney and Kate McAnelly
Chapter Seven – Positioning the Views of Children with Developmental Disabilities at the Centre of Early Interventions
Clare Carroll
Chapter Eight – A Minority Within the Family: Disabled Children and Parental Perceptions
Tessa-May Zirnsak
Chapter Nine – Nature Play for Disabled Children – Muddy Puddles for All?
Angharad E. Beckett and Deborah Fenney
Chapter Ten – Disabled Children’s Recreational Uses of Digital Technologies in the Context of Children’s Digital Rights
Sue Cranmer
Chapter Eleven – The Individual Education Programme: Who knows best?
Anne-Marie Callus and Georgette Bajada
Chapter Twelve – Digital Participation and Competencies for Young People with Intellectual or Developmental Disabilities
Sue Caton, Kristin Alfredsson Ågren and Parimala Raghavendra
Chapter Thirteen – Autistic Youth as Active Agents for Societal Change
Anna Robinson and Kerrie Highcock
Chapter Fourteen – ‘Normal, different, or something in between’. Young people with Autism and Down syndrome and Psycho-Emotional Disablism
Alice Scavarda
Chapter Fifteen – We are Sexual Too: Sexuality in the Lives of Disabled Adolescents
Claire Azzopardi-Lane and Alan Santinele Martino
Chapter Sixteen - Access to Higher Education and Preparation for Adulthood of Young Persons with Intellectual Disability in Mexico: Challenges of the Somos Uno Mas [We Are One of the Same] Programme Jesica Paola Gomez Muñoz, Maria Edith Reyes Lastiri and Tomas Puentes Leon
Biography
Angharad E. Beckett, FRSA, is Professor of Political Sociology and Social Inclusion at the University of Leeds. She is a member of the Centre for Disability Studies (Leeds), where she was for many years Co-Director. She is a researcher and educator in the area of disability and social justice, with a primary focus on rights and inclusion for disabled children. She regularly advises national and international governments and civil society organisations on related matters.
Anne-Marie Callus is Associate Professor in the Department of Disability Studies, Faculty for Social Wellbeing, University of Malta. She lectures, researches, and has published on disability rights, empowerment of persons with intellectual disability, inclusive education and disabled children’s rights, as well as cultural representations of persons with disability. She is Deputy Editor of Disability & Society.
