1st Edition

The Routledge Handbook of Disability and Sexuality

Edited By Russell Shuttleworth, Linda Mona Copyright 2021
    528 Pages 20 B/W Illustrations
    by Routledge

    528 Pages 20 B/W Illustrations
    by Routledge

    This handbook provides a much-needed holistic overview of disability and sexuality research and scholarship. With authors from a wide range of disciplines and representing a diversity of nationalities, it provides a multi-perspectival view that fully captures the diversity of issues and outlooks.

    Organised into six parts, the contributors explore long-standing issues such as the psychological, interpersonal, social, political and cultural barriers to sexual access that disabled people face and their struggle for sexual rights and participation. The volume also engages issues that have been on the periphery of the discourse, such as sexual accommodations and support aimed at facilitating disabled people's sexual well-being; the socio-sexual tensions confronting disabled people with intersecting stigmatised identities such as LGBTBI or asexual; and the sexual concerns of disabled people in the Global South. It interrogates disability and sexuality from diverse perspectives, from more traditional psychological and sociological models, to various subversive and post-theoretical perspectives and queer theory. This handbook examines the cutting-edge, and sometimes ethically contentious, concerns that have been repressed in the field.

    With current, international and comprehensive content, this book is essential reading for students, academics and researchers in the areas of disability, gender and sexuality, as well as applied disciplines such as healthcare practitioners, counsellors, psychology trainees and social workers.


    Contextualising Disability and Sexuality Studies
    Russell Shuttleworth, Julia Bahner and Linda Mona

    PART 1 Theoretical frames and intersections

    1. Theorising disabled people’s sexual, intimate and erotic lives/current theories for disability and sexuality
    Kirsty Liddiard

    2. Theoretical developments: Queer theory meets crip theory
    Alan Santinele Martino and Anna Fudge Schormans

    3. Thinking differently about the sexual capacities of bodies with Deleuze and the case of infertility amongst men with Down syndrome
    Michael Feely

    4. A critical rethinking of sexuality and dementia: A prolegomenon to future work in critical dementia studies and critical disability studies
    Alisa Grigorovich and Pia Kontos

    5. Combating old ideas and building identity: Sexual identity development in people with disabilities
    Emily Lund, Anjali J Forber Pratt and Erin Andrews

    6. Sexuality and disability in Brazil: Contributions to the promotion of agency and social justice
    Marivete Gesser

    PART 2 Subjugated histories and negotiating traditional discourses

    7. Sexuality, disability, and madness in California’s eugenics era
    Jess Whatcott

    8. Disability rights through reproductive justice: Eugenic legacies in the abortion wars
    Michelle Jarman

    9. Sexuality and the disregard of lived reality: The sexual abuse of children and young people with disabilities
    Gwynnyth Llewellyn

    10. Sexuality and physical disability: Perspectives and practice within Orthodox Judaism
    Ethan Eisen

    PART 3 Politics, policies and legal frames across the world

    11. Sexual citizenship, Disability policy and facilitated sex in Sweden
    Julia Bahner

    12. Access to sexual and reproductive health for people with disabilities in Zimbabwe
    Tafadzwa Rugoho and Frances Maphosa

    13. "Tick the straight box": Lesbian, gay, bisexual & transgender (LGBT+) people with intellectual disabilities in the UK
    David Abbott

    14. Sexuality and sexual rights of young adults with intellectual disability in Central Java, Indonesia
    Diann Ramawati and Pam Block

    15. Advance consent and network consent
    Alex Boni-Saenz

    PART 4 Representation, performance and media

    16. Missing in action: Desire, dwarfism and getting it on/off/up…A critique and extension of disability aesthetics
    Debra Keenahan

    17. Sex, love and disability on screen
    Courtney Andree

    18. Dynamics of disability and sexuality: Some African literary representations
    Omolola Ladele

    19. Flaunting towards otherwise: Queercrip porn, access intimacy and leaving evidence
    Loree Erickson

    20. Desexualising disabled people in the news media
    Gerard Goggin and Helen Meekosha

    PART 5 Sexual narratives and (inter)personal perspectives

    21. Understanding the lived experience of transgender youth with disabilities
    Angela Ingram

    22. Flowing desires underneath the chastity belt: Sexual re-exploration journeys of women with changed bodies
    Inge Blockmans, Elisabeth De Schauwer, Geert Van Hove and Paul Enzlin

    23. (Il)licit sex among PWDs in Trinidad & Tobago: Sexual negotiation or compromise
    Sylette Henry-Buckmire

    24. Reimaging sexuality in the disability discourse in South Asia
    Anita Ghai

    25. Disability and asexuality?
    Karen Cuthbert

    26. Through a personal lens: A participatory action research project challenging myths of physical disability and sexuality in South Africa
    Poul Rohleder, Xanthe Hunt, Mussa Chiwaula, Leslie Schwartz, Stine Hellum Braathen and Mark T Carew

    27. "That’s my story": Transforming sexuality education by, for and with people with intellectual disabilities
    Amie O’ Shea and Patsie Frawley

    PART 6 Accommodation, support and sexual well being

    28. Sexual wellness for older persons with a disability: A life-course perspective
    Maggie Syme, Stacy Reger, Christina Pierpaoli Parker and Sally J Hodges

    29. Toward sexual autonomy and well-being for persons with upper limb mobility limitations: The role of masturbation and sex toys
    Ernesto Morales, Geoffrey Edwards, Véronique Gauthier, Frédérique Courtois, Alicia Lamontagne and Antoine Guérette

    30. Paid sexual services available for people with disability: Exploring the range of modalities offered throughout the world
    Rachel Wotton

    31. Promoting sexual well-being for women with disabilities through family-centred integrated behavioural healthcare
    Colleen Clemency Cordes and Christine Borst

    32. Occupational therapy’s engagement with empowering disability and sexuality
    Kathryn Ellis & Dikaios Sakellarious

    33. Disability and social work: Partnerships to promote sexual well-being
    Sally Lee

    34. Intersections of disability, sexuality, and spirituality within psychological treatment of people with disabilities
    Sarah Brindle and Samantha Sharp




    Russell Shuttleworth is Senior Lecturer in Social Work at Deakin University, Australia. An anthropologist, social worker and disability support worker/personal assistant by training, his major research areas include the social and cultural construction of disability and impairment, disability and sexuality and disability and masculinities.

    Linda Mona has worked as a clinical psychologist for the VA Long Beach Healthcare System in California, USA, for the past 19 years. As the clinical director of spinal cord injury/disorder psychology, she has prioritised disability affirmative psychological services and sexual health assessment and treatment for people with disabilities.

    "The study of disability and sexuality is thriving and this handbook is one of the most important volumes to date for scholars, students, and activists interested in the field. Focusing on a diverse, interdisciplinary range of issues from impressively global perspectives, the volume is indispensable for thinking about sexuality and disability in theory, representation, and policy." Robert McRuer is Professor of English at George Washington University in Washington, DC, USA.

    "It is a pleasure for me to offer my full endorsement of The Routledge Handbook of Disability and Sexuality by Russell Shuttleworth and Linda Mona. Although issues relating to sexuality and disability have been in the literature for many years, this collection provides an astonishing array of current cultural, disability affirmative perspectives on the topic. This is must reading for anyone interested in understanding the linkage between these concepts." Stanley Ducharme, Ph.D., Professor of Rehabilitation Medicine and Urology, Boston University School of Medicine, Boston, MA. USA.