1st Edition

The Routledge Handbook of Service User Involvement in Human Services Research and Education

    568 Pages 16 B/W Illustrations
    by Routledge

    568 Pages 16 B/W Illustrations
    by Routledge

    Worldwide, there has been a growth in service user involvement in education and research in recent years. This handbook is the first book which identifies what is happening in different regions of the world to provide different countries and client groups with the opportunity to learn from each other.

    The book is divided into five sections: Section One examines service user involvement in context exploring theoretical issues which underpin service user involvement. In Section Two we focus on the state of service user involvement in human services education and research across the globe including examples of innovative practice, but also identifying examples of where it is not happening and why. Section Three offers more detailed examination of such involvement in a wide range of professional education learning settings. Section Four focuses on the involvement of service users in research involving a wide range of service user groups and situations. Lastly, Section Five explores future challenges for education and research to ensure involvement remains meaningful.

    The book includes forty-eight chapters, including seventeen case-studies, from all regions of the world, this is the first book to both highlight the subject’s methodological and theoretical issues and give practical examples in education and research for those wishing to engage in this field.

    It will be of interest to all service users, scholars and students of social work, nursing, occupational therapy, and other human service subjects.


    Peter Beresford and Hugh McLaughlin

    Section 1: Service user involvement in context: Theoretical issues

    1. Critical issues in the development of service user involvement
      Joe Duffy and Peter Beresford
    2. Improving Understanding of Service User Involvement and Identity: A Guide for Service Providers and Practitioners Organising Involvement Activities with Disabled People
      Becki Meakin and Joanna Matthews with introduction by Colin Cameron
    3. Who are the service users? Language, neo-liberalism and social constructions
      Hugh McLaughlin
    4. Experiential knowledge in mental health services, research and professional education
      Steve Gillard, Rhiannon Foster and Angela Sweeney
    5. Ethical Involvement of Service Users
      Beverley Burke and Andrea Newman
    6. A Matter of Power: Relationships between professionals and disabled service users
      Colin Cameron with Joanne Molloy-Graham and Maggie Cameron
    7. The Housing Campaign - User Involvement in Action
      Brendan Mc Keever
    8. Talking Heads: Why asylum seeker parents are scared of social workers – mending the gaps between us
      Nada Abdulla, Bini Araia, , Helen Casey, Ibrahim Dialllo, Anna Makoni, Yvonne Mondiwa, Elaine Spencer, Luwam Tekeste
    9. Talking Heads: Training for the Non-Disabled
      Colin Cameron, Maggie Cameron and Colin Hambrook
    10. Section 2: The state of service user involvement in human services involvement in education and research across the globe

    11. A tsunami of lived experience: From regional Australia to global mental health activism
      Joanne Newman, Rebecca Jury and Kathy Boxall
    12. The meeting place between service users and students: mediums of learning at the School of Social Work of the University of Sherbrooke
      Annie Lambert, Paul Morin, Sophie Nobert-Bordeleau, Émilie Pothier-Tessier, Marie-Josée St-Jean, Annie Patenaude
    13. Talking Heads: The non-existence of meaningful service user consultation in Congo Brazzaville
      Charden Pouo
    14. Service User Involvement & Gap-mending Practices in Sweden
      Cecilia Heule, Marcus Knutagård & Arne Kristiansen
    15. Challenging racism in Hong Kong: An e-learning approach to social work education
      Raes Begum Baig, Kar-Choi Chan and Jim Campbell
    16. Lessons learned: The meaning making power of involvement
      Joanne Samsome
    17. Blank page: involvement of expert by experience in social work education in Slovenia
      Petra Videmšek
    18. Emergence and Clashes in Disabled Service User Organisations in South Korea
      SeKwang Hwang
    19. Service users and participation - The Spanish experience
      Emilio Jose Gómez-Ciriano
    20. Social work in the UK: a case for radical co-production replacing worn out structures
      Helen Casey, Dan Vale and Maryam Zonouzi
    21. Faculty perceptions of service user involvement in human services education
      Nafees Alam
    22. Talking Heads: Nigeria to the UK
      Larry Amadi-Emina
    23. Section 3: Service user involvement in human services education

    24. Disabled Activists’ Involvement in Developing and Delivering Disability Studies at St Angela’s College, Sligo, Ireland
      Peter Kearns and Susan Carton
    25. Service User Involvement in Professional Skill Development: Planning and Delivering a Skills Practice Workshop
      Jim Bell, Martin Fraser, Sara Hitchin, Linda McCulloch and Lynda Morrison
    26. Service users reaching out to help professionals: Shaping professional education on substance use and poverty issues
      Hilda Loughran, Gary Broderick, Saol Women’s Group and Ray Hegarty
    27. Service User involvement in Nurse education
      Laura Serrant, Gillian James and Opeyemi Odejimi
    28. The potential for interprofessional education
      Elizabeth Anderson, Jenny Ford and Emma Smith
    29. All our justice: People with convictions and ‘participatory’ criminal justice
      Gillian Buck, Paula Harriott, Kemi Ryan, Natasha Ryan, Philippa Tomczak
    30. Continuous Teacher Training For Providing Specialised Educational Services In Rio De Janeiro, Brazil
      Leila Regina d´Oliveira de Paula Nunes and Carolina Rizzotto Schirmer
    31. Doing more than telling stories
      Wendy Bryant
    32. Investing in Children – How a children’s human rights organisation contributes to human services research and education
      Jordan Dodds with Felicity Shenton
    33. Don’t judge a book by its cover: Lived experiences of the involvement of older people in social work education
      Sarah Lonbay, Shirley Hallam, Patricia
    34. Service user involvement in countries of conflict
      Joe Duffy
    35. New Zealand’s indigenous end of life care customs: A qualitative study on Māori, by Māori, for Māori, with Māori
      Tess Moeke -Maxwell, Merryn Gott and Kathleen Mason
    36. ‘Moving away from the sound of one hand clapping?’
      John Stephens, Catherine Baker and Ali Finlayson
    37. Social Pedagogy, Collaborative Learning and Outcomes in Service User and Carer Involvement in Social Work Education
      Susan Levy, Claire Ferrier, Elinor Dawson and Jordan Risbridger
    38. Section 4: Service user involvement in research in the human services

    39. Lessons of Inclusive Learning: The value of experiential knowledge of persons with a learning disability in social work education
      Jean Pierre Wilken, Jeroen Knevel and Sascha van Gijzel
    40. How can we survive and thrive as survivor researchers?
      Jacqui Lovell-Norton, Konstantina (Dina) Poursanidou, Karen Machin, Stephen Jeffreys and Holly Dale
    41. The trouble with co-production
      Nick Watson
    42. Augmented communication: Patient and public involvement in research: rhetoric and reality
      Liz Moulam, Stuart Meredith, Helen Whittle, Yvonne Lynch and Janice Murray
    43. From tokenism to full participation: autistic involvement in research and the delivery of services
      Damian Milton
    44. The Possibilities and Constraints of Service User Research Collaborations: The peer qualitative research group
      Jijian Voronka, Jill Grant, Deb Wise-Harris, Arianna Kennedy & Janina Komaroff
    45. Rhetoric to reality: challenges and opportunities for embedding young people’s involvement in health research
      Louca-Mai Brady
    46. "Recently, I have felt like a service user again" Conflicts in collaborative research, a case from Norway
      Sidsel Natland
    47. What difference does it make? The service user contribution to evaluation
      Roger Smith and Claire Russell
    48. Talking Heads: Reflections of a Researcher with Multiple Impairments: Raising the voices of young disabled people preparing for life beyond segregated school
      Paul Doyle
    49. Talking Heads: Reflections on Learning from Gap Mending Participants: Experiences Matter
      Compiled by Helen Casey, Cecilia Heule and Arne Kristiansen
    50. Section 5: Future Challenges and Opportunities

    51. Professional Education: Does Service User Involvement make a difference?
      Colin Cameron, Helen Casey and Joe Duffy
    52. Service user involvement in research: What difference does it make?
      Peter Beresford and Hugh McLaughlin


    Hugh McLaughlin is Professor of Social Work at Manchester Metropolitan University, UK.

    Peter Beresford is Professor of Citizen Participation at the University of Essex, UK and Emeritus Professor of Social Policy at Brunel University London, UK.

    Colin Cameron is a Senior Lecturer at Northumbria University, Newcastle upon Tyne, UK.

    Helen Casey is a staff tutor with the Open University and has worked in social work education for fifteen years.

    Joe Duffy is a Senior Lecturer in Social Work at Queen’s University, Belfast, Northern Ireland.

    "The first book on service user involvement in education and research that highlights its methodological and theoretical issues. It’s impressive in its scope with the presentation of case-studies from all over the globe. With its reflections on what works in practice, it is a significant contribution to the contemporary debate of co-working with service users in human services education and research."

    Dr Kristel Driessens, Head Centre of Expertise ‘Strengths Based Social Work’, Karel de Grote Hogeschool, Antwerp, Belguim

    "This book that locates service user involvement in a historical and political context. The theoretical discussions in the book are followed by case presentations from different nations where efforts to implement user involvement in education and/ or research are discussed. To say that service user involvement is a very important thing, and that it is necessary, is not the same as saying that it makes a difference-this book begins to provide the evidence of the impact it can make."

    Ole Petter Askheim, Professor, Inland Norway University of Applied Sciences

    "As a ‘user’, lecturer, author and social debater, it feels ‘obvious’ that social colleges work actively with experiential knowledge in education, but as a ‘user-representative’, I know that it is unfortunately far from ‘obvious’. The challenge is to take notice of the very useful experience for people to learn from me as a human being, a not scientific experiment. The knowledge of how to make the most of user competence in a proven and dignified way is available and this book provides an excellent basis for taking the form of such an ambition."

    Malin Widerlöv, User Lecturer

    "Service User involvement has been central to the process of updating the Global Standards for Social Work Education and Training. The IFSW/IASSW global consultation has revealed that, despite some progress in Service User involvement in research and education, there is a dearth of relevant literature. This seminal collection of essays helps bridge such gap. The editors of this handbook have managed to collect, document and analyse unique examples of Service User involvement in education and research. Crucially, the book also provides a powerful contextualisation of the barriers service users have faced in academic and research contexts. The authors make a passionate case for the necessity of genuine and meaningful co-production of knowledge. This is an essential handbook for all academics, students, service users and activists interested in co-production and the creation of inclusive and empowering academic environments."

    Vasilios Ioakimidis, Professor of Social Work- Head of Allied Health, Oral Health and Social Work, University of Essex. IFSW Global Commissioner- Interim Education Commission