1st Edition
The Routledge International Handbook of Disability and Global Health
This handbook will raise awareness about the importance of health and well-being of people with disabilities in the context of the global development agenda: Leaving No-one Behind.
There has been a growing discussion on how people with disabilities should be included in the global health landscape. An estimated one billion people have some form of disability, 80% of whom live in low- and middle-income settings. People with disabilities are more likely to be poor, with restricted access to health and social services, education, rehabilitation and employment. Despite this, people with disabilities are often overlooked in global health and development efforts. Furthermore, the COVID-19 pandemic has shown that unless systematically planned for and included in policies and programmes, people with disabilities remain at an increased risk of being adversely affected in times of humanitarian crisis and emergency disasters.
Divided into eight sections:
- Disability and Health Frameworks
- Health Justice, Rights and Bioethics
- Gendering Disability Health
- Disability and Global Mental Health
- Disability and Access to Healthcare, Including Workforce Development
- Crises and Health
- Technology and Digital Health
- Disability, Ageing and Dementia Care
This handbook covers the full range of topics pertaining to disability and global health including inclusive health; access to rehabilitation; global mental health and disability; medical training and disability; community based inclusive development for improving health and rehabilitation; maternal health and sexual reproduction; preventive care and health promotion for people with disabilities; health, disability and indigenous knowledges; bioethics and human rights; data protection; and health in the global south.
It will be of interest to all scholars, students and professionals working in the fields of disability studies, health studies, nursing, medicine, allied health, development studies and sociology.
Section One - Disability and Health Frameworks
Edited by Minerva Rivas
Chapter One – “Nothing About Us Without Us!”: Disability representation in healthcare structures, policies, and relationships
Kristi L. Kirschner, Judy Panko Reis, Debjani Mukherjee and Jim I. Charlton
Chapter Two – Discussing models of disability and models of health in a global context
Hisayo Katsui and Lieketseng Ned
Chapter Three – Epistemologies of disability from the global South: Towards good health
Chioma Ohajunwa and Maximus Monaheng Sefotho
Chapter Four – The radical potential of psychosocial disability activism in the global South
Akriti Mehta
Chapter Five – Inclusive and Equitable Policies: EquiFrame and EquIPP as Frameworks for the Analysis of the Inclusiveness of Policy Content and Processes
Joanne McVeigh, Hasheem Mannan, Ikenna Ebuenyi and Malcolm MacLachlan
Chapter Six – Redressing access to equitable health care for people with disabilities: Using a health systems framework
Vic McKinney, Marguerite Schneider and Emma Louise McKinney
Section Two - Health Justice, Rights and Bioethics
Edited by Minerva Rivas
Chapter Seven - Lack of accessibility and the Right to Health: Reframing access as a manifestation of epistemic justice
Caroline Jagoe and Parigya Sharma
Chapter Eight - Disability, Mental Health and International Human Rights Law: A Global Health Perspective
Charles O’Mahony
Chapter Nine – Decision-making for or against predictive genetic/genomic testing for late-onset diseases in prenatal and pediatric setting
Bettina M. Zimmermann
Chapter Ten – Health care reforms and policies from a disability-rights perspective
Elena S. Rotarou
Chapter Eleven – Disability competencies for disability rights in the curriculum in the Global North and Global South
LuanJiao Hu, Kanchan Marcus, Stephanie D Short and Satendra Singh
Section Three – Gendering Disability Health
Edited by Karen Soldatić
Chapter Twelve – Disability and reproductive health: Global experiences
Tara Casebolt
Chapter Thirteen – Traumatic Brain Injury as a Result of Violence for Indigenous Women: The Importance of Appropriate Monitoring Systems, Screening and Models of Care
Michelle Fitts and Karen Soldatić
Chapter Fourteen – The influence of marital relationships on the mental health of mothers of children with autism in Bangladesh
Sharin Shajahan
Chapter Fifteen – Indigenous Healing Cosmologies and Western Systems in Madwaleni: A Proposed space for a Reconciliation Model for Plural Healthcare
Thando May and Gubela Mji
Section Four - Disability and Global Mental Health
Edited by Leslie Swartz
Chapter Sixteen – Global Mental Health and Disability in Sub-Saharan Africa
Nathaniel Scherer, Eleni Misganaw, Michael Njenga, Grace Ryan and Julian Eaton
Chapter Seventeen – Culture, disability and global mental health: Perspectives from an African worldview
Lily Kpobi, Jennifer Peprah, Leveana Gyimah and Dzifa Attah
Chapter Eighteen – Stigma and Discrimination against People with Psychosocial Disabilities in Low- And Middle-Income Countries
Amanpreet Kaur, Sudha Kallakuri, Tesfahun Mulatu, Bezawit Ketema, and Graham Thornicroft
Chapter Nineteen – Integrating persons with psychosocial disabilities across sectors: meaningful and authentic inclusion in global mental health
Charlene Sunkel, Claudia Sartor, Kriti Vashisht, Karina Stjernegaard and Agus Sugianto
Chapter Twenty – Mapping “Global mental health”: Histories, practices, and research
Hannah Goozee and Jana Fey
Chapter Twenty-one – Health Humanities and Psychosocial Disabilities in a Campus-town: An Autoethnographic Case Study
Gayathri Prabhu
Chapter Twenty-two - The Vexed Question of Capacity as Enshrined by the UNCRPD: Psychosocial disability, and human rights
Alex Freeman
Section Five – Disability and Access to Healthcare, Including Workforce Development
Edited by Satendra Singh
Chapter Twenty-three – Much more than ‘getting there’: Frontline views of healthcare engagement with people with disabilities
Kate Sherry, Maryke Bezuidenhout and Anri-Louise Oosthuizen
Chapter Twenty-four – Access to healthcare services by people with intellectual and developmental disabilities
Callista Kahonde and Fleur Boot
Chapter Twenty-five – Disability Studies and Critical Pedagogy in Health Professional Education: Developing a community-focused inclusive workforce using lessons from South Africa
Judith Mahlangu, Fasloen Adams, Laurel Baldwin-Ragaven and Theresa Lorenzo
Chapter Twenty-six – Practical ways of doing health promotion with special focus on people with disabilities
Keikelame, M.J.,Molamu, M J and Maart, S.
Chapter Twenty-seven – “Unfortunately we are stuck”: Considerations for improving access and inclusion to health for people who are deaf
Victor de Andrade and Joanne Neille
Chapter Twenty-eight – Promoting Inclusive Development in a Rural Community
Mpilo Henry Booi, Xakathile Dabula and Eve Madeleine Duncan
Chapter Twenty-nine – Knocking on Access Doors: Learners with Disabilities in Health Professions
Sharad Philip, Shubha Nagesh and Satendra Singh
Chapter Thirty – Disability Accommodations: Towards Equity and Justice
Satendra Singh, Sharad Phillip and Shubha Nagesh
Chapter Thirty-one – Sign language and other minority languages in healthcare: Reframing language as a tool for accessing health care
Nomfundo Moroe and Khetsiwe Phumelele Masuku
Section Six – Crises and Health
Edited by Lieketseng Ned
Chapter Thirty-two – Catastrophic Health-Care Expenditures for People with Disabilities: A barrier to health care
Mónica Pinilla-Roncancio
Chapter Thirty-three – Disability, Food Insecurity, and Health: Examining Linkages in the Yemini Civil War
Bryce Austin Hollander, Janet E. Lord and Michael Ashley Stein
Chapter Thirty-four – Nurturing Children with Disabilities in Crisis
Shubha Nagesh and Mildren Omino
Chapter Thirty-five – Shared stories of uncertainty, fear and discrimination: How narrative interviews about COVID-19 with people with disabilities in 5 countries exemplify exacerbation of existing liminality and structural violence
Mary Wickenden
Section Seven - Technology and Digital Health
Edited by Karen Soldatić
Chapter Thirty-six – The worlds of disability and health technologies: A vital part of the larger inclusion environment
Gerard Goggin and Surona Visagie
Chapter Thirty-seven – Prerequisites for digital participation – The case of digital health technology and people with impairments
Stefan Johansson, Per-Olof Hedvall, Jan Gulliksen, Lena von Koch and Catharina Gustavsson
Chapter Thirty-eight – Market Forces in Automated Mental Health Services: New Claims in Algorithmic Care and Disability Justice
Piers Gooding
Chapter Thirty-nine – Barriers for adoption and innovation on rehabilitation technology in LMIC countries: A case study in Colombia
Andrés M. González-Vargas, Johann Barragán Gómez, Mario Andres Chavarria and Minerva Rivas Velarde
Chapter Forty – Virtual reality as a panacea to promote the health of people with neurodevelopmental disabilities? Current evidence, challenges, and the way forward
Caroline Mills, Danielle Tracey and Robert Gorkin
Chapter Forty-one – Algorithmic bias and access of patients with a disability to healthcare in the digital health age: Legal perspectives from Switzerland, the European Union, and the United States of America
Hélène Bruderer
Section Eight – Disability, Ageing and Dementia Care
Edited by Lieketseng Ned
Chapter Forty-two – Dementia, disability, and global health
Déborah Oliveira, Dubhglas Taylor, Eileen Taylor, Roxanne Jacobs, Elaine Mateus, Christine Musyimi, Elizabeth Mutunga and Marguerite Schneider
Chapter Forty-three – Moving toward inclusive dementia care for an ethnically diverse population in Belgium
Saloua Berdai Chaouni
Chapter Forty-four – Ageing, disability, dementia and gender and sexuality diversity: What do the intersections tell us about models of care?
Louisa Smith, Lyn Phillipson, Emma Kirby, Christy E. Newman and Amie O’Shea
Chapter Forty-five – Disability and Dementia Care in Ghana: A political economy review
Daniel Doh, Kofi Awuviry-Newton and Samuel Dakey
Chapter Forty-six – The Double Bind: Ageing and the Transition of Care for People with Disability and Their Carers from Minority Migrant Communities
Karen Soldatić, Daniel Doh, Rohini Balram, Lise Mogensen and Nichole Georgeou
Biography
Lieketseng Ned is an occupational therapist and an Associate Professor in the Division of Disability and Rehabilitation Studies in the Department of Global Health at Stellenbosch University. She is also an Editor-in-Chief of the African Journal of Disability.
Minerva Rivas Verlade is an Associate Professor in Disability Health at the Geneva School of Health Science.
Satendra Singh MD is a Professor of Physiology at the University College of Medical Sciences, University of Delhi, India.
Leslie Swartz is a clinical psychologist and Professor in Psychology at Stellenbosch University, South Africa.
Karen Soldatić is a Canadian Excellence Research Chair – Health Equity and Community Wellbeing, Toronto Metropolitan University and Institute Fellow, Whitlam Institute, Western Sydney University.
