This book explores the life experiences of children who are born with a variety of medical or physical disorders. It provides an integration of scientific and personal perspectives on such conditions. In accounting for both outcomes, it suggests how the social responses of others (family, friends, and professionals) may foster resilience as well as risk. It also describes the results of an intervention that facilitates the more positive experiences of such children early in life.
Contents: Introduction. Part 1. Historical, Cultural, and Scientific Perspectives on Children's Physical and Medical Disorders. Ways of Thinking about Children's Physical and Medical Disorders. Conceptualizing Medical and Physical Disorders in the Sciences: A Shifting Story. How Do Children Thrive (Or Fail to Thrive) in the Face of Early Adversity? Part 2. The Experiences of Children with Mobility Constraints. Mobility Constraints: Why the Caged Bird Sings. Parents and Children as Collaborators in Managing Mobility Constraints. I Get By with a Little Help from My Friends. Part 3. The Child in a World Apart: The Experiences of Children who Appear to be Socially Unresponsive. Ways of Understanding the Child in a World Apart. Parental Reactions to the Child in a World Apart. Social Relationships Experienced by Children in a World Apart. Part 4. The Socially Stigmatized Child: The Experiences of Children with Appearances Anomalies. Understanding the Experiences of Children Who Look Different. Parental Responses to Children with Stigmatizing Disorders. Moving Outside the Family: The Worlds of Children Who Look Different. Part 5. The Positive Possibilities of an Early Intervention Program. Epilogue.