1st Edition
Understanding Mesothelioma The Experiences and Care Needs of People with Mesothelioma and their Families
1. Introduction.
Angela Tod, Clare Gardiner
2. Mesothelioma.
Leah Taylor, Peter Allmark, Angela Tod
3. The role of the specialist nurse in multidisciplinary and partnership working.
Leah Taylor, Sarah Hargreaves, Angela Tod
4. The road to diagnosis
Bethany Taylor, Angela Tod
5. Treatment experiences
Anna Bibby, Anna Morley, Clare Warnock
6. Symptoms and their management
Donna Wakefield, Rachel Smithers, Anna Bibby
7. The supportive care needs of people with mesothelioma
Zoe Davey, Catherine Henshall
8. Clinical trials
Bethany Taylor, Leah Taylor, Angela Tod, Simon Bolton.
9. Palliative and end of life care in mesothelioma
Clare Gardiner, Sarah Hargreaves.
10. The legacy of the illness for the family
Sarah Hargreaves, Sarah Thomas, Samantha Cox
11. The role of primary care in mesothelioma
Emilie Couchman
12. Mental health and mesothelioma
Virginia Sherborne, Stephanie Ejegi-Memeh
13. Financial implications
Sarah Thomas
14. Seeking compensation
Jennifer Seavor
15. Conclusion.
Angela Tod, Clare Gardiner, Bethany Taylor, Liz Darlison.
Biography
Angela Tod is Professor of Older People and Care at the University of Sheffield, UK, and Co-Director of the Mesothelioma UK Research Centre (MURC).
Bethany Taylor is a Research Fellow at the Mesothelioma UK Research Centre (MURC), University of Sheffield, UK.
Clare Gardiner is Professor of Palliative Care at the University of Sheffield, UK, and Co-Director of the Mesothelioma UK Research Centre (MURC).
Liz Darlison is the CEO of Mesothelioma UK and a Nurse Consultant in Mesothelioma.
"This insightful book challenges preconceptions around mesothelioma, revealing the unique adversities faced by patients and carers living with the disease, alongside the expert support provided by clinical nurse specialists. It draws on contemporary evidence of poignant lived experiences, providing an invaluable guide for clinicians supporting patients throughout the mesothelioma journey. An exceptional resource for nursing, medical and allied health professionals."
- Dr Rachel King, University of Sheffield
"This textbook is an essential resource for anyone involved in the care or research involving patients with mesothelioma. By centering the experiences of patients and their families, it fills a critical gap in the literature. Combining expert insights, international research, and a practice-based approach, it offers invaluable guidance for healthcare professionals navigating this complex disease. Timely and comprehensive, this book is a vital tool for improving care and outcomes for those affected by mesothelioma."
- Professor Dean Fennell, Chair of Thoracic Oncology, University of Leicester
