1st Edition

Understanding Young Onset Dementia Evaluation, Needs and Care

Edited By Marjolein de Vugt, Janet Carter Copyright 2022
    188 Pages 5 B/W Illustrations
    by Routledge

    188 Pages 5 B/W Illustrations
    by Routledge

    Understanding Young Onset Dementia provides a state-of-the-art overview of approaches to care and evaluation for people with young onset dementia. It reviews the challenges in providing care and services, outlines new innovations in treatment and explores the impact of the condition to offer guidance about best practice in care.

    Written by world-leading researchers and experts in the field, this book gives key evidence for best practice and focuses on lived experience of those with young onset dementia. It has a broad focus looking at aspects of care beyond diagnosis and gives a comprehensive summary of the current qualitative and quantitative research in the field of young onset dementia. This international collaboration fills a much-needed gap in the academic market and is vital to guide learning and deliver future innovations.

    This book will be of great interest for academics, scholars and post graduate students in the field of mental health and dementia research. It will also appeal to neurologists, psychiatrist, geriatricians and psychologists looking to update their knowledge or already working in the field.


    Wendy Mitchell


    Part 1: Introduction to young onset dementia

    Chapter 1

    Young-onset dementia - challenges in nomenclature and clinical definitions 

    Dennis van de Veen, Christian Bakker, Raymond Koopmans

    Chapter 2

    Epidemiology and subtypes of dementia

    Dexter Penn, Martin Rossor

    Part 2: Evaluation of dementia in younger people

    Chapter 3

    Clinical presentation and differential diagnosis of dementia in younger people

    Yolande Pijnenburg, Cynthia Klaassen

    Chapter 4

    Changes in behavior and emotions

    Joany Millenaar, Marjolein de Vugt

    Part 3: Needs in Young Onset Dementia 

    Chapter 5

    The experience of living with young onset dementia

    Jan Oyebode

    Chapter 6

    The perceptions and experiences of children and young people who have a parent with young onset dementia

    Pat Sikes, Melantie Hall

    Chapter 7

    Care needs and experiences with services in young-onset dementia

    Christian Bakker

    Part 4: Care and Support

    Chapter 8

    International differences in best practice for young onset dementia 

    Vasileios Stamou, Janet Carter

    Chapter 9

    Vocational Rehabilitation for Young Onset Dementia: International Perspectives

    Jun Yaeda, Nobuko Sunami

    Chapter 10

    An overview of ehealth interventions to support caregivers. A review of evidence relevant to Young Onset Dementia

    Bridget Jones

    Chapter 11

    Palliative care in people with Young Onset Dementia

    Raymond Koopmans, Jenny van der Steen, Marieke Perry, Romy Van Rickstal



    Marjolein de Vugt is Professor of Psychosocial Innovations in Dementia at the Division of Psychiatry and Neuropsychology, Maastricht University and Health Care Psychologist at Maastricht University Medical Centre, Netherlands.

    Janet Carter is Associate Professor of Psychiatry at UCL and Honorary Consultant of Old Age Psychiatry at the North East London NHS Mental Health Trust, UK.