1st Edition
Understanding the Grief and Loss Experiences of Carers Research, Practitioner and Personal Perspectives
List of figures and tables
List of contributors
Introduction
Kerry Jones and Joanna Horne
1: Ambiguous loss: Personal and professional reflections
Andrea Perry
2: Impact on identity for those working as healthcare professionals when taking on the role of carer
Julie Messenger
3: ‘I could cry all day, every day, about my losses’: Caring for young adults with life-shortening conditions – families’ experiences of disruption and loss
Sarah Earle et al.
4: From physically active to physically inactive: Understanding the experiences of a familial carer’s loss of self
Nichola Kentzer, Martin Penson and Melinda Spencer
5: Both sides of the coin: A mother’s experience of caring for an adult daughter living with serious life-limiting illness
Susan Walker
6: ‘God hasn’t given up on them’: Christian dementia carers’ narratives of experiencing and challenging ‘anticipatory grief’ and ‘social death’
Jennifer Riley and John Swinton
7: The grief of care partners of people living and dying with dementia: A psychodynamic perspective
Phil McEvoy et al.
8: When an adult with significant caregiving responsibilities for children is at end-of-life with cancer: A carer’s pre-bereavement and post-bereavement experiences
Jeffrey R. Hanna, Cherith J. Semple and Lisa Strutt
9: When caring ends: Exploring the hidden aspects of loss in trajectories out of caring in Australia
Emma Kirby et al.
10: Former carers: Grief, loss and other stories
Mary Larkin and Alisoun Milne
Index
Biography
Kerry Jones is a Senior Lecturer at The Open University, UK, where her research and teaching focus on death, dying, grief, bereavement and end-of-life care. As Co-Lead of the Open University Carers Research Group, she has published and presented her research on care homes and care-giving staff during the pandemic, stillbirth neonatal death, parental bereavement, brain injury, dementia and suicide. Kerry was an academic consultant for A Time to Live on BBC 2.
Joanna Horne is a Senior Lecturer in Psychology and Counselling at The Open University, UK. She conducts research within the areas of physical activity and carer wellbeing, and support needs of young carers. Jo is a member of the Open University Carers Research Group.
