This book pushes the boundaries in the way we approach people with profound intellectual and multiple disabilities, and in how we work with them in education and research. While it is grounded in diverse theoretical frameworks and disciplines, the book coheres around a commitment to seeing people with profound intellectual and multiple disabilities as equal citizens who belong in our classrooms, research projects and community lives.
Each section covers policy contexts, key ideas and recent research. Featuring contributions from around the world, the book incorporates established and new voices, different disciplines and experiences. Additionally, it includes pieces from family members of people with profound intellectual and multiple disabilities. Divided into three parts, the book explores three main topics:
- Belonging in education
- Belonging in research
- Belonging in communities
Belonging for People with Profound Intellectual and Multiple Disabilities is an invaluable resource for scholars, professionals and postgraduate research students with an interest in children or adults with profound intellectual and multiple disabilities.
Chapter 1 Changes in the lives of people with profound intellectual and multiple disabilities
Melanie Nind and Iva Strnadová
Part I Belonging in education
Fellow Traveller Account 1: Belonging and segregation – the oxymoron of the special school
Chapter 2 Exploring the situated social being of children with profound and multiple learning difficulties across educational contexts: A study of belonging
Chapter 3 Inclusion and participation of students with profound intellectual and multiple disabilities
Bea Maes, Anneleen Penne, Katrijn Vastmans and Michael Arthur-Kelly
Chapter 4 On 'being' together as belonging: Inside Golden Tent
Part II Belonging in research
Fellow Traveller Account 2: Siblings belonging together
Hilra Gondim Vinha
Chapter 5 Crossing the wobbly bridge: An inclusive approach to researching playfulness and children with profound and multiple learning difficulties
Chapter 6 A trip to the caves: Making life story work inclusive and accessible
Chapter 7 Shifting the gaze: The use of wearable cameras in research
Part III Belonging in communities
Fellow Traveller Account 3: Are people with profound and multiple learning disabilities and their families welcome in the wider learning disability community?
Clare Palmer and Jan Walmsley
Chapter 8 Approaching a person with profound intellectual and multiple disabilities: What do you think, what do you do?
Chapter 9 Singing together: Friends’ and families’ perspectives of possible ways to be included in society
Catherine de Haas
Chapter 10 Enabling people with profound and multiple learning disabilities to belong in public and community archive collections
Liz Tilley, Sue Ledger and Catherine de Haas
Chapter 11 Belonging and people with profound intellectual and multiple disabilities: Pushing the boundaries
Iva Strnadová and Melanie Nind
"This book gives a glimpse into the lives of people with profound intellectual and multiple disabilities. It is a reality of many obstacles and challenges. In contrast, the focus of this book is on the positive possibilities. The message is that if we are willing, people in this situation can have playful lives, agency, choices and feel the joy of belonging."
- Dr. Kjartan Skogly Kversøy, Journal of Educational Thought