1st Edition
Consumer Health Informatics Enabling Digital Health for Everyone
Part I Foundations
Chapter 1 Individuals’ Opportunities and Challenges in the Era of Participatory Healthcare
Alla Keselman
Chapter 2 Consumer Health Informatics as a Field
Catherine Arnott Smith
Chapter 3 Health Literacy and Other Competencies: The Skills Consumers Need in Order to Be Effective in the Digital Health Information Environment
Alla Keselman
Chapter 4 Online Databases to Support Consumer Health Informatics
Catherine Arnott Smith
Chapter 5 Trusted Information Sources
Catherine Arnott Smith
Chapter 6 People Engaging with Health Information Technology
Catherine Arnott Smith and Alla Keselman
Part II Tools
Chapter 7 PHRs and Patient Portals
Catherine Arnott Smith
Chapter 8 There Is an App for That: The Universe and the Promise of Consumer Health Mobile Apps
Alla Keselman
Chapter 9 Smart Medical Homes and Their Potential to Support Independent Living
Alla Keselman
Chapter 10 Patient Communities
Catherine Arnott Smith
Chapter 11 The Ethics of Consumer Health Informatics
Catherine Arnott Smith and Alla Keselman
Index
Biography
Catherine Arnott Smith, PhD, is a Professor in the Information School and a Discovery Fellow, Virtual Environments Group, Wisconsin Institutes for Discovery, University of Wisconsin-Madison. She is a former medical librarian who moved into biomedical informatics for her PhD through the Center (now Department) of Biomedical Informatics at the University of Pittsburgh (2002), where she was a National Library of Medicine medical informatics predoctoral trainee. Her research centers on consumer interactions with clinical information systems, mediated through text, in settings that range from patient portals to public libraries to disabilities support centers.
Alla Keselman, PhD, is a Senior Social Science Analyst in the Office of Engagement and Training, National Library of Medicine, Bethesda, MD. She holds a PhD in human cognition and learning and an MA in biomedical informatics from Columbia University. Dr. Keselman coordinates NLM efforts in evaluating the impact of its health information outreach and community engagement programs. Her research interests include lay understanding of complex health concepts, scientific literacy, and the provision of health information outside clinical settings. She has done work on bringing health and environment-related topics to the science classroom and conducted research into the role of libraries in providing health information to the public.
“An engaging introduction to an exciting multidisciplinary field where positive impact depends less on technology than on understanding and responding to human motivations, specific information needs, and life constraints”
-- Betsy L. Humphreys, former Deputy Director, National Library of Medicine
