Consumer Health Informatics : Enabling Digital Health for Everyone book cover
1st Edition

Consumer Health Informatics
Enabling Digital Health for Everyone

ISBN 9781138337459
Published December 14, 2020 by Chapman and Hall/CRC
262 Pages 50 B/W Illustrations

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Book Description

"An engaging introduction to an exciting multidisciplinary field where positive impact depends less on technology than on understanding and responding to human motivations, specific information needs, and life constraints."

-- Betsy L. Humphreys, former Deputy Director, National Library of Medicine

This is a book for people who want to design or promote information technology that helps people be more active and informed participants in their healthcare. Topics include patient portals, wearable devices, apps, websites, smart homes, and online communities focused on health.

Consumer Healthcare Informatics: Enabling Digital Health for Everyone educates readers in the core concepts of consumer health informatics: participatory healthcare; health and e-health literacy; user-centered design; information retrieval and trusted information resources; and the ethical dimensions of health information and communication technologies. It presents the current state of knowledge and recent developments in the field of consumer health informatics. The discussions address tailoring information to key user groups, including patients, consumers, caregivers, parents, children and young adults, and older adults. For example, apps are considered as not just a rich consumer technology with the promise of empowered personal data management and connectedness to community and healthcare providers, but also a domain rife with concerns for effectiveness, privacy, and security, requiring both designer and user to engage in critical thinking around their choices.

This book’s unique contribution to the field is its focus on the consumer and patient in the context of their everyday life outside the clinical setting. Discussion of tools and technologies is grounded in this perspective and in a context of real-world use and its implications for design. There is an emphasis on empowerment through participatory and people-centered care.

Table of Contents

Part I Foundations

Chapter 1 Individuals’ Opportunities and Challenges in the Era of Participatory Healthcare

Alla Keselman

Chapter 2 Consumer Health Informatics as a Field

Catherine Arnott Smith

Chapter 3 Health Literacy and Other Competencies: The Skills Consumers Need in Order to Be Effective in the Digital Health Information Environment

Alla Keselman

Chapter 4 Online Databases to Support Consumer Health Informatics

Catherine Arnott Smith

Chapter 5 Trusted Information Sources

Catherine Arnott Smith

Chapter 6 People Engaging with Health Information Technology

Catherine Arnott Smith and Alla Keselman

Part II Tools

Chapter 7 PHRs and Patient Portals

Catherine Arnott Smith

Chapter 8 There Is an App for That: The Universe and the Promise of Consumer Health Mobile Apps

Alla Keselman

Chapter 9 Smart Medical Homes and Their Potential to Support Independent Living

Alla Keselman

Chapter 10 Patient Communities

Catherine Arnott Smith

Chapter 11 The Ethics of Consumer Health Informatics

Catherine Arnott Smith and Alla Keselman


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Catherine Arnott Smith, PhD, is a Professor in the Information School and a Discovery Fellow, Virtual Environments Group, Wisconsin Institutes for Discovery, University of Wisconsin-Madison. She is a former medical librarian who moved into biomedical informatics for her PhD through the Center (now Department) of Biomedical Informatics at the University of Pittsburgh (2002), where she was a National Library of Medicine medical informatics predoctoral trainee. Her research centers on consumer interactions with clinical information systems, mediated through text, in settings that range from patient portals to public libraries to disabilities support centers.

Alla Keselman, PhD, is a Senior Social Science Analyst in the Office of Engagement and Training, National Library of Medicine, Bethesda, MD. She holds a PhD in human cognition and learning and an MA in biomedical informatics from Columbia University. Dr. Keselman coordinates NLM efforts in evaluating the impact of its health information outreach and community engagement programs. Her research interests include lay understanding of complex health concepts, scientific literacy, and the provision of health information outside clinical settings. She has done work on bringing health and environment-related topics to the science classroom and conducted research into the role of libraries in providing health information to the public.