Consumer Health Informatics
Enabling Digital Health for Everyone
- Available for pre-order. Item will ship after December 14, 2020
This is a book for people who want to design or promote information technology that helps people be more active and informed participants in their healthcare. Topics include patient portals, wearable devices, apps, websites, smart homes and online communities focused on health.
Consumer Healthcare Informatics educates readers in the core concepts of consumer health informatics: participatory healthcare; health and e-health literacy; user-centered design; information retrieval and trusted information resources; and the ethical dimensions of health information and communication technologies. It presents the current state of knowledge and recent developments in the field of consumer health informatics. The discussions address tailoring information to key user groups including patients, consumers, caregivers, parents, children and young adults, and older adults. For example, apps are considered not just as a rich consumer technology, with promise of empowered personal data management and connectedness to community and healthcare providers, but also a domain rife with concerns for effectiveness, privacy and security, requiring both designer and user to engage in critical thinking around their choices.
The book’s unique contribution to the field is its focus on the consumer and patient in the context of their everyday life outside the clinical setting. Discussion of tools and technologies is grounded in this perspective and in a context of real-world use and its implications for design. There is an emphasis on empowerment through participatory and people-centered care.
Table of Contents
1. Individuals’ opportunities and challenges in the era of participatory healthcare
2. Consumer health informatics as a field
3. Health literacy and other competencies: The skills consumers need in order to be effective in the digital health information environment
4. Online databases to support consumer health informatics
5. Trusted sources
1. PHRs/Patient portals
2. There is an app for that: the universe and the promise of consumer health mobile apps
3. Smart medical homes and their potential to support independent living
4. Patient communities
Catherine Arnott Smith, PhD, is an Associate Professor in the Information School and a Discovery Fellow attached to the Virtual Environments Group, Wisconsin Institutes for Discovery, University of Wisconsin-Madison. She is a former medical librarian (Northwestern University and Lincoln National Reinsurance Companies) who moved into biomedical informatics for her PhD through the Center (now Department) of Biomedical Informatics at the University of Pittsburgh (2002), where she was a National Library of Medicine medical informatics predoctoral trainee. Her research centers on consumer interactions with clinical information systems, mediated through text; in settings that range from personal health records to public libraries to disabilities support centers.
Alla Keselman, PhD is a Senior Social Science Analyst in the Division of Specialized Information Services, National Library of Medicine, Bethesda, MD.