1st Edition

Critical Dementia Studies An Introduction

Edited By Richard Ward, Linn J. Sandberg Copyright 2023
    312 Pages 19 B/W Illustrations
    by Routledge

    This book puts the critical into dementia studies. It makes a timely and novel contribution to the field, offering a thought-provoking critique of current thinking and debate on dementia. Collectively the contributions gathered together in this text make a powerful case for a more politically engaged and critical treatment of dementia and the systems and structures that currently govern and frame it.

    The book is inter-disciplinary and draws together leading dementia scholars alongside dementia activists from around the world. It frames dementia as first and foremost a political category. The book advances both theoretical and methodological thinking in the field as well as sharing learning from empirical research. Outlining the limits to existing efforts to frame and theorise the condition, it proposes a new critical movement for the field of dementia studies and practice.

    The book will be of direct interest to researchers and scholars in the field of dementia studies and wider fields of health, disability and care. It will provide a novel resource for students and practitioners in the fields of dementia, health care and social care. The book also has implications for dementia policymaking, commissioning and community development.

    The Open Access version of this book, available at http://www.taylorfrancis.com, has been made available under a Creative Commons Attribution-Non Commercial-No Derivatives 4.0 license.

    Introduction: Why critical dementia studies and why now?

    Linn J. Sandberg and Richard Ward

    Part I: Reclaiming and recasting 

    1. I want to be the orchestrator of my entire fabulous life

    Dáithí Clayton

    2. Small quantities at a time: On music, poetry and social media

    Ronald Amanze

    3. Who knew a pothole could bring it all back?

    Patrick Ettenes

    4. Nobody is allowed to offend us – not by language, nor by attitude

    Helga Rohra

    5. Recognizing Birkby: Living and caring with dementia

    Wendy Hulko, Marsha Griffith and Birkby Griffith 

    Part II: Re/framing 

    6. ‘Lost in time like tears in rain’: Critical Perspectives on Personhood and Dementia 

    Stephen Katz and Annette Leibing

    7. Multi-Species Dementia Studies: How moving beyond human exceptionalism can advance dementia's more critical turn 

    Nick Jenkins

    8. Reframing 'ethnicity' in dementia research: Reflections on current whiteness of research and the need for an anti-racist approach 

    Maria Zubair

    9. Frames of Dementia, grieving otherwise in The Father, Relic and Supernova: Representing dementia in recent film 

    Sadie Wearing

    Part III: Care and control 

    10. Precarity and Dementia 

    Amanda Grenier and Chris Phillipson

    11. An Emerging Necropolitics of the Dementias 

    Hamish Robertson and Joanne Travaglia

    12. Segregation and Incarceration of People Living with Dementia in Care Homes: Critical Disability and Human Rights Approaches 

    Linda Steele, Lyn Phillipson, Kate Swaffer and Richard Fleming 

    13. The carnival is not over: cultural resistance in dementia care environments 

    Andrea Capstick and John Chatwin

    Part IV: Forging alliances  

    14. Convergences, Collaborations, and Co-conspirators: The Radical Potentiality of Critical Disability Studies and Critical Dementia Studies 

    Hailee M. Yoshizaki-Gibbons    

    15. Thinking dementia differently: Dialogues between feminist scholarship and dementia studies 

    Linn J. Sandberg 

    16. Revolutionising dementia policy and practice: Guidance from ‘the memory girl’, an accomplice 

    Wendy Hulko

    17. Taking a Queer Turn – the significance of Queer Theory for Critical Dementia Studies   

    Andrew King

    18. Neurodiversity and dementia: Pitfalls, possibilities and some personal notes 

    Linda Örulv 

    19. Thinking back and looking ahead: Co-ordinates for critical methodologies in dementia studies

    Richard Ward and Linn J. Sandberg


    Richard Ward is Senior Lecturer in Dementia Studies at the University of Stirling and Head of Division for Ageing and Dementia. He is a registered social worker who specialised in working with older people living with dementia. Richard’s research interests include social care practice, the experience of living with dementia and how place-based experience can influence the lives of people with chronic and progressive conditions. Richard is part of a network of academics with a shared interest in studying the international development of dementia friendly communities. He is also the co-founder of the Critical Dementia Studies Network. His recently published book is Ward R, Clark A & Phillipson L (eds.) (2021) Dementia and Place: Practices, Experiences and Connections.

    Linn J. Sandberg is Associate Professor in Gender Studies and Senior Lecturer in the School of Culture and Education, Södertörn University, Sweden. Sandberg’s research interests are in the field of ageing, gender, sexuality, embodiment and dementia. Some of her most recent research interests include a qualitative interview study on sexual and intimate couple relationship after the onset of Alzheimer’s disease. Currently she is the Principal Investigator of a project on LGBTQ people with dementia and Swedish dementia care, funded by the Swedish Research Council for Health, Working life and Welfare (FORTE). Sandberg is the co-founder of the Critical Dementia Studies Network, (https://memoryfriendly.org.uk/programmes/critical-dementia-network/) together with Richard Ward, and a co-managing editor of the book series Dementia in Critical Dialogue.