1st Edition

Critical Dementia Studies An Introduction

Edited By Richard Ward, Linn J. Sandberg Copyright 2023
312 Pages 19 B/W Illustrations
by Routledge

312 Pages 19 B/W Illustrations
by Routledge

This book puts the critical into dementia studies. It makes a timely and novel contribution to the field, offering a thought-provoking critique of current thinking and debate on dementia. Collectively the contributions gathered together in this text make a powerful case for a more politically engaged and critical treatment of dementia and the systems and structures that currently govern and frame... Read more

Introduction: Why critical dementia studies and why now?

Linn J. Sandberg and Richard Ward

Part I: Reclaiming and recasting 

1. I want to be the orchestrator of my entire fabulous life

Dáithí Clayton

2. Small quantities at a time: On music, poetry and social media

Ronald Amanze

3. Who knew a pothole could bring it all back?

Patrick Ettenes

4. Nobody is allowed to offend us – not by language, nor by attitude

Helga Rohra

5. Recognizing Birkby: Living and caring with dementia

Wendy Hulko, Marsha Griffith and Birkby Griffith 

Part II: Re/framing 

6. ‘Lost in time like tears in rain’: Critical Perspectives on Personhood and Dementia 

Stephen Katz and Annette Leibing

7. Multi-Species Dementia Studies: How moving beyond human exceptionalism can advance dementia's more critical turn 

Nick Jenkins

8. Reframing 'ethnicity' in dementia research: Reflections on current whiteness of research and the need for an anti-racist approach 

Maria Zubair

9. Frames of Dementia, grieving otherwise in The Father, Relic and Supernova: Representing dementia in recent film 

Sadie Wearing

Part III: Care and control 

10. Precarity and Dementia 

Amanda Grenier and Chris Phillipson

11. An Emerging Necropolitics of the Dementias 

Hamish Robertson and Joanne Travaglia

12. Segregation and Incarceration of People Living with Dementia in Care Homes: Critical Disability and Human Rights Approaches 

Linda Steele, Lyn Phillipson, Kate Swaffer and Richard Fleming 

13. The carnival is not over: cultural resistance in dementia care environments 

Andrea Capstick and John Chatwin

Part IV: Forging alliances  

14. Convergences, Collaborations, and Co-conspirators: The Radical Potentiality of Critical Disability Studies and Critical Dementia Studies 

Hailee M. Yoshizaki-Gibbons    

15. Thinking dementia differently: Dialogues between feminist scholarship and dementia studies 

Linn J. Sandberg 

16. Revolutionising dementia policy and practice: Guidance from ‘the memory girl’, an accomplice 

Wendy Hulko

17. Taking a Queer Turn – the significance of Queer Theory for Critical Dementia Studies   

Andrew King

18. Neurodiversity and dementia: Pitfalls, possibilities and some personal notes 

Linda Örulv 

19. Thinking back and looking ahead: Co-ordinates for critical methodologies in dementia studies

Richard Ward and Linn J. Sandberg

Biography

Richard Ward is Senior Lecturer in Dementia Studies at the University of Stirling and Head of Division for Ageing and Dementia. He is a registered social worker who specialised in working with older people living with dementia. Richard’s research interests include social care practice, the experience of living with dementia and how place-based experience can influence the lives of people with chronic and progressive conditions. Richard is part of a network of academics with a shared interest in studying the international development of dementia friendly communities. He is also the co-founder of the Critical Dementia Studies Network. His recently published book is Ward R, Clark A & Phillipson L (eds.) (2021) Dementia and Place: Practices, Experiences and Connections.

Linn J. Sandberg is Associate Professor in Gender Studies and Senior Lecturer in the School of Culture and Education, Södertörn University, Sweden. Sandberg’s research interests are in the field of ageing, gender, sexuality, embodiment and dementia. Some of her most recent research interests include a qualitative interview study on sexual and intimate couple relationship after the onset of Alzheimer’s disease. Currently she is the Principal Investigator of a project on LGBTQ people with dementia and Swedish dementia care, funded by the Swedish Research Council for Health, Working life and Welfare (FORTE). Sandberg is the co-founder of the Critical Dementia Studies Network, (https://memoryfriendly.org.uk/programmes/critical-dementia-network/) together with Richard Ward, and a co-managing editor of the book series Dementia in Critical Dialogue.