1st Edition
Disability in the Family Guidance for Professionals from Parents and Guardians
Acknowledgements
Introduction
Who Is This Book For?
Why Do You Need This Book?
Radical Acceptance in the Trenches
Chapter 1: Grief and Loss
Facing What Is
Dealing with Feeling
Kids… Facing What Is
Giving Up Hope
The Comparison Game
Chapter 2: Guilt and Shame
Is This My Fault?
Am I Doing Enough?
Am I Good Enough?
Typically Developing Siblings
Placement
Chapter 3: Isolation and Marginalization
Not Worth the Risk
No One Gets It
No One Comes Around
Judgment by Kids
Judgment by Strangers
Judgment by Friends and Family
Spouses and Partners
Forever Parents
Chapter 4: Stress and Fear
Exhaustion
Loss of Self
Financial Burden
Asking for Help
Behavior and Aggression
Burnout
Worry
Fear For the Future
Terminal Illness
Chapter 5: Disparities and Disenfranchisement
The System
Accessibility
Health Disparities
Unconscious Bias
Cultural Perspectives
Credibility Deficit
Epilogue
References
Resources for Support
Biography
Barbara Boroson, LMSW, is an autism education specialist, dynamic speaker, and the parent of a young-adult child with disabilities. This is her fifth book.
