1st Edition

Educating Children with Fragile X Syndrome A Multi-Professional View

Edited By Denise Dew-Hughes Copyright 2004
    212 Pages
    by Routledge

    212 Pages
    by Routledge

    What is Fragile X? The most common inherited cause of learning difficulties, affecting a child's ability to tackle key areas such as literacy and numeracy, and causing behaviour problems and social anxiety.

    What can teachers do to help children with Fragile X become more effective learners? This definitive text will provide essential support and information for teachers with the expertise of an international field of researchers, whose variety of perspectives contribute to a unique, multi-professional approach. Each chapter of the book suggests practical intervention strategies, based on sound educational principles expressed in clear non-specific terms. A range of important topics are considered, including:

    * the physical and behavioural characteristics of Fragile X
    * the effects of Fragile X on learning
    * medication and therapy
    * related conditions such as autism and attention deficit disorders.

    Breaking down the barriers of professional practice, this book establishes the groundwork for successful and valuable multi-professional teamwork. By providing immediate access to a body of empirical knowledge and advice from other disciplines, it will encourage teachers to incorporate this approach into their own practice. Everyone responsible for the education of a child with Fragile X syndrome should read this book.

    Introduction: Fragile X syndrome and education Denise Dew-Hughes Part 1: The child with Fragile X syndrome 1. Physical and behavioural characteristics of Fragile X syndrome Randi Hagerman 2. The importance of diagnosis Jeremy Turk 3. Cognitive strengths and difficulties Kim Cornish 4. Atypical language production of males with Fragile X syndrome Vicki Sudhalter and Richard Belser 5. Educating girls with Fragile X Lesley Powell Part 2: Education issues 6. The effects of Fragile X on learning Marcia Braden 7. School placement and provision Denise Dew-Hughes 8. Formal assessment and constructing an individual education profile Marcia Braden 9. Key issues in assessment Charles Gibb 10. Obtaining educational support for a child with special needs: A structured approach for parents and teachers Kate Schnelling and Denise Dew-Hughes Part 3: Education strategies 11. Classroom adaptations: Good practice and work habits Marcia Braden 12. Home and school: Developing a genuine partnership Claire Wolstencroft 13. Classroom strategies for Fragile X and autism Julie Taylor 14. Speech and language therapy Cathy Taylor 15. Occupational therapy and sensory integration therapy for individuals with Fragile X syndrome Dido Green Part 4: Development, Behaviour and Psychology 16. Development in the early years Kim Cornish and Gaia Scerif 17. Behaviours and management Jeremy Turk 18. Related conditions: Autism and attention deficit/hyperactivity disorders (AD/HD) Kim Cornish and Julie Taylor 19. Medication matters Jeremy Turk Part 5: Family and social matters 20. The genetics of Fragile X syndrome Angela Barnicoat and Barbara Carmichael 21. Adults with Fragile X syndrome Greg O'Brien 22. Behaviour and cognitive profiles in adults Kim Cornish 23. Women with Fragile X Lesley Powell 24. Support for individuals with Fragile X syndrome Jeremy Turk Conclusion Denise Dew-Hughes


    Denise Dew-Hughes has vast teaching and learning experience. She is Specialist Advisor in Education in the Fragile X Society, UK.

    'This fascinating and informative book is accessible and practical in style. The knowledge gained through reading it should greatly assist teachers in planning, implementing and evaluating programmes designed to overcome the barriers to effective learning that children with fragile-X syndrome so often face.' - Gail Bailey, British Journal of Special Educational Needs

    'During a teaching career many teachers will have opportunities to work with students with Fragile X Syndrome in mainstream classes. In depth knowledge of the features of the syndrome and appropriate instructional strategies will help teachers work successfully and compassionately with this group of students. This book is recommended for academic libraries serving teacher preparation programs, education practitioners, and others wanting to learn about the syndrome'. - Education Review (US)

    'This interdisciplinary approach is likely to be of value to a teacher wanting to learn more about the instructional implications of this syndrome... Much research has been done on Fragile X Syndrome and the empirically based content of this book is a strength... it is more accessible to teachers and others when collected into an edited monograph such as this one.' - Education Book Reviews

    'This is a comprehensive, scholarly, yet practical overview of the principal areas relating to Fragile X syndrome ... [and] is extremely well organized ... Denise Dew-Hughes should be congratulated for trawling the world to obtain such a group of contributors ... There is no doubt at all that teachers will welcome the range of perspectives in this book and will be grateful that such a range of expertise can be found within the covers of one book ... I can confidently recommend this book to all professionals and parents involved in this area. For educators working in this field this book will be indispensable.' Gavin Reid, Educational Review