This book is written through the lens of patients, caregivers, healthcare representatives and families, highlighting new models of interaction between providers and patients and what people would like in their healthcae experience. It will envision a new kind of healthcare system that recommends on how/why providers must connect to patients and families using HIT, as well as suggestions about new kinds of HIT capabilities and how they would redesign systems of care if they could. The book will emphasize best practices, and case studies, drawing conclusions about new models of care from the stories and input of patients and their families reienforced with clinical research.
Preface. Introduction. Minor and Acute Illnesses-the Future of Primary Care. Acute Care and Hospitalization. DIY Healthcare. What Caregivers Need and Want. Behavior Change. Programs that are Working Today. Whole and Alternative care. Call to Action/Conclusions.
"In 2030, we’ll look back at this book as the first to document the most compelling change ever to occur in healthcare. Participatory Healthcare combines the facts, figures, trends and market forces driving person-centered health with the heart and soul of the patients who are leading this movement. I’ve made it required reading for all at WEGO Health, and it’s a must for every stakeholder in healthcare."
-Jack Barrette, CEO, WEGO Health
"Participatory Healthcare, edited by Jan Oldenburg with Associate Editor Mary Griskewicz, could become the defining textbook of our field – the new cornerstone of our movement… This book is a fitting continuation of Tom Ferguson’s legacy: by reframing the discussion around the role of patients in healthcare, it makes the case for a world-changing paradigm shift in our approach to patient care. Participatory Healthcare provides exactly what we need: conceptual essays and pragmatic stories that demand to be heard. I very much hope you’ll read it, from cover to cover."
-Dave deBronkart, Cancer survivor, co-founder and chair emeritus, Society for Participatory Medicine