1st Edition

The Routledge International Handbook of Children's Rights and Disability

Edited By Angharad E. Beckett, Anne-Marie Callus Copyright 2023
    718 Pages 53 B/W Illustrations
    by Routledge

    This handbook provides authoritative and cutting-edge analyses of various aspects of the rights and lives of disabled children around the world.

    Taking the UN Convention on the Rights of Persons with Disabilities (CRPD) and the UN Convention of the Rights of the Child (CRC) as conceptual frameworks, this work appraises the current state of affairs concerning the rights of disabled children across different stages of childhood, different life domains, and different socio-cultural contexts.

    The book is divided into four sections:

    • Legislation and Policy
    • Children’s Voice
    • The Life Course in Childhood
    • Life Domains in Childhood

    Comprised of 37 newly commissioned chapters featuring analyses of UN documents and case studies from Australia, Brazil, Ethiopia, Hong Kong, Italy, the Netherlands, Norway, Papua New Guinea, Serbia, South Africa, Spain, Sweden, the United Kingdom, the United States, and Vanuatu, its multidisciplinary approach reflects the complexities of the lives of disabled children and the multifarious nature of the strategies needed to ensure their rights are upheld.

    It will be of interest to researchers and students working in disability studies, education, allied health, law, philosophy, play studies, social policy, and the sociology of childhood. It will also be a valuable resource for professionals/practitioners, allowing them to consider future directions for ensuring that disabled children’s rights are realised and their well-being and dignity are assured.

    Gerard Quinn

    Chapter One – Introduction: Children’s Rights and Disability
    Anne-Marie Callus and Angharad E. Beckett

    Section One – Legislation and Policy

    Chapter Two – The Human Rights Model for Children with Disabilities
    Jonas Ruškus

    Vignette One – Meet Aurora

    Chapter Three – For the Full Incorporation of the Rights of Children, With or Without Disabilities, Into the Human Rights Model
    Ignacio Campoy Cervera

    Chapter Four – An Analysis of the UNCRPD Concluding Observations on the Rights of Children with Disabilities
    Bronagh Byrne

    Chapter Five – ‘They still need to listen more’: Working in partnership with disabled young researchers to inform and shape country submissions to the UN Committee on the Rights of Persons with Disabilities and UN Committee on the Rights of the Child
    Anita Franklin and Zara Todd

    Chapter Six – Human Rights Through the Eyes of Children with Disabilities
    Elena Jenkin, Erin Wilson, Robert Campain, Kevin Murfitt and Matthew Clarke

    Vignette Two – Meet Charlie
    Charlie, with Lorna Hamilton

    Chapter Seven – Developing the Right(s) Approach for Autism
    Nick Hodge, Patty Douglas and Bronagh Byrne

    Chapter Eight – Poverty, Deprivation and Disabled Children’s Right to Citizenship
    Edgar Galea-Curmi

    Chapter Nine – The Care Dependency Grant in South Africa: Challenges on the road to inclusive rights
    Zara Trafford

    Section Two – Children’s Voice

    Chapter Ten – Children’s Rights, Arts-based Methods and Gramsci’s Common Sense: The possibilities of freedom
    Francesca Bernardi

    Chapter Eleven – Beyond the Spoken Word - Facilitating the disabled child’s voice through the Mosaic approach
    Elvira Psaila

    Vignette Three – Meet Liv
    Liv, with Michael Rosenkratz

    Chapter Twelve – Disabled Children’s Participation in Healthcare Decision-Making
    Rados Keravica

    Chapter Thirteen – Participation of Disabled Children in Health Guidelines Development
    Kevin De Sabbata and Elena Syurina

    Chapter Fourteen – The Right to an ‘Active Voice’ Without Words: Co-creating knowledge in special schools with Art Research Together
    Karian Schuitema

    Vignette Four – Meet Liam
    Liam, with Jessica Wythe

    Chapter Fifteen – The Rights of the Child When Symbolic Language is Out of Reach
    Kristin Vindhol Evensen

    Chapter Sixteen – Do All Children Have the Right to Express Views? Listening to ‘differently-voiced’ communicators
    Lauran Doak

    Section Three – The Life Course in Childhood

    Chapter Seventeen – Babies with Disabilities and Their Entitlement to Imagined Hopeful Futures
    Belinda Johnson

    Chapter Eighteen – Is Disability a Justification to Undermine the Right to Life?
    Begoña Rodríguez Díaz

    Vignette Five – Meet Ane
    Ane, with Heng-hao Chang and Meng-Hsuan Hsieh

    Chapter Nineteen – Down Syndrome Abortion Bans: Law and ethics
    Ryan H. Nelson and Jamie M. Crist

    Chapter Twenty – Clash of Competing Rights in Surrogacy: Embryos, foetuses and children with a disability
    JosAnn Cutajar

    Chapter Twenty-one – Framing Does Matter: How health professionals can empower disabled children and their families
    Claire Reinhardt and Amy Robasse

    Chapter Twenty-two – From ‘Retarded’ Education to Authentic Life: A Personal Education Retrospective
    Tammy Bachrach and Timothy Woods

    Vignette Six – Meet Michaela
    Michaela, with Clíona de Bhailís

    Chapter Twenty-three – Design as an Agent of Children's Rights? Inclusive mobility design for children with disabilities
    Cara Shaw and Farnaz Nickpour

    Chapter Twenty-four – Assistive Technologies as Rights Enablers
    Pedro Encarnação and Albert M. Cook

    Chapter Twenty-five – ‘Look At Us…We’re Walking’: Parental advocacy v. a child’s privacy in the age of internet sharing
    Stephanie Patterson and Kathleen McGoldrick

    Chapter Twenty-six – An Open Exploration Around End-of-Life Journey’s for Children Facing Terminal Illness/Severe Disability
    Caroline Ellison, Clara Chapman Van Duivenbode, Fiona Buchanan and Nicole Moulding

    Section Four – Life Domains in Childhood

    Chapter Twenty-seven – The Changing Landscape of Inclusive Education: A shift toward universal design for learning
    Frederic Fovet

    Vignette Seven – Meet Ġinġa
    Ġinġa, with Georgette Bajada

    Chapter Twenty-eight – ‘Lawfare’ and the Role of Civil Society on Promoting the Inclusive Education Public Policy in Brazil
    Rodrigo Hübner Mendes and Luiza Andrade Corrêa

    Chapter Twenty-nine – A Certain Kind of Freedom, a Certain Subject of Right. The disability dispositif of inclusion and the government of the disabled child in the Italian education system
    Francesca Peruzzo

    Chapter Thirty – Social Justice and Language Rights for Deaf Children
    Tom Humphries, Gaurav Mathur, Donna Jo Napoli and Christian Rathmann

    Chapter Thirty-one – Through the Eyes of Children with Disabilities: Recognising children’s agency in their play in inclusive playspaces
    Jenene Burke and Lisa Stafford

    Chapter Thirty-two – Disabled Children’s Access to Music. Music’s transformational potential and music therapy’s dis/enabling role in making music accessible
    Maren Metell

    Vignette Eight – Meet Euletta
    Euletta and Begoña Rodriguez

    Chapter Thirty-three – The Right to Grow Together: Exploring the roles of community agents in providing support for early adolescents with disabilities to make friends and join groups
    Gemma Diaz Garolera, Maria Pallisera Díaz and Judit Fullana Noell

    Chapter Thirty-four – Sex, Love, and Human Rights: Sexual rights for children and youth experiencing disability
    Michelle Janzen

    Chapter Thirty-five – Who is Worthy of Rights? An analysis of children living at the intersections of disability, citizenship and migration in the United States and Italy
    Valentina Migliarini and Chelsea Stinson

    Chapter Thirty-six – The Right to Safety: Promoting the authority of disabled children to tackle rights resistance
    Sally Robinson and Jan Idle

    Chapter Thirty-seven – Ceci n'est pas un dénouement | This is not a conclusion
    Angharad E. Beckett and Anne-Marie Callus


    Angharad E. Beckett is Professor of Political Sociology and Social Inclusion and Director of Research and Innovation at the School of Sociology and Social Policy, University of Leeds. She is a member of the interdisciplinary Centre for Disability Studies at the University, where she was for many years a joint Director. Her research interests include disability theory and politics, the resistance practices of the disabled people’s movement, inclusive education, and play/leisure for disabled children and young people. She teaches Disability Studies at undergraduate and postgraduate level and has supervised many doctoral students in this field. She founded and is Co-Chair of the Editorial Executive for the open-access International Journal of Disability and Social Justice.

    Anne-Marie Callus is Associate Professor in the Department of Disability Studies, Faculty for Social Wellbeing, University of Malta. She lectures, researches, and has published on disability rights, empowerment of persons with intellectual disability, inclusive education and disabled children’s rights, as well as cultural representations of persons with disability. She is Deputy Editor of Disability & Society.