Understanding Rett Syndrome offers a concise, evidence-based introduction to Rett Syndrome (RTT), covering a range of topics from diagnosis and causes, to treatment and family management. It focuses on improving the quality of life for those with the syndrome by suggesting practical ways of managing the condition at home and at school, offering support and guidance to all parents and caregivers learning how to help children with RTT.
Over the course of six chapters Martino, Capri and Fabio explore signs and symptoms of RTT, along with an overview of treatment, therapy and interventions for those living with the condition, focusing on technological aids such as eye-tracking and ICT and new neural techniques. They also explain the consequences of the reclassification of Rett Syndrome from "Pervasive Developmental Disorders" to "Neurology Disorders", resulting in a significant change in diagnosis and treatment for the condition.
Illustrated with interviews with parents of children living with RTT, Understanding Rett Syndrome is essential reading for parents and caregivers, as well as practitioners in clinical and educational psychology, counselling, mental health, nursing, child welfare, public healthcare, and those in education.
Chapter 1: Signs and Symptoms of Rett Syndrome
Chapter 2: What causes Rett Syndrome
Chapter 3: Living with the condition of Rett Syndrome: quality of life and family systems
Chapter 4: Treatment and therapy
Chapter 5: Practical ways to manage the condition at school
Chapter 6: Rett Syndrome around the world